update

we are all well
Alex had her last set of scans in October and still can see shrinkage in the remaining mass ( almost 5 year ago she ended treatment so good to see)
we have not done much at this point but Alex had Middle camp with Camp Quality in April

we got to meet some of the characters from StarWars with butts on bikes for prems and also Jimmy from Jimmy's Walk for Cancer,

we had a lovely week down at Bradley's Place in Victor Harbor thanks to CCA in July also, girls enjoyed time with family and seeing Kangaroos in the crisp morning air so relaxing and serene ♥

Girls school did the hairlarious day raising funds for CCA

Alex turned 10 (15th July) and 5 years ago we had been told that no treatment she would not have seen her 5th Birthday so special to know we are still a family standing tall against Childhood Cancer

After October scans and bloods have been told kidney function is lower than it should be so we got a referral to renal specialist Alex has slight damage to her kidney from treatment, at this point be are now in at renal every 3 months for bloods and scans just to monitor and if anything comes up act to slow down any more damage,  March 2015 we go onto 12 monthly scans for oncology though 😊

we also had family camp with Camp Quality this month a nice weekend away at Douglas scrub, fun but raw with the high emotions as we all spoke to Red Kite about our journey, which bought up more then we tell most about and hearing others stories even long term ones over 5 year gap

this is our year all out in one post but other news is we had Robyn diagnosed with Dyslexia a reading issue she is clever but can not decode words so now working on how best to help her learn her own way🔠
I am struggling with studies and looking for cord bit hard but will keep moving forward
hubby plodding along as men do with added stress

but it's nearing Christmas so positive and fun ahead even with bloods et,
want to take girls to see the magic cave and Santa yes my 10 yr old still believes in Santa 💖🎄🎅

Will post photos soon in another post with Xmas events added too

First Family Camp in SA

the last weekend off the school holidays we had our first SA family Camp and we had a wonderful time,
2 weeks of school holidays the girls had many adventures as well, first week we had scans and echo-cardiogram done for her appointment with the oncologist {school holidays were from the 27th sep to the 15th oct as the school had a pupil free day on the Monday :) }
we went to see Turbo at the movies that week as well, Robyn missed Sibs Club with CCA though due to her having croup :( and we didn't want to share if it was contagious ♥
the second week they had a long weekend with Daddy, then Tuesday they went to the big Rocking horse, toy factory and chocolate factory with vac care, Wednesday they went to the Monarto Zoo with Vac care and Friday the movies with Vac care Friday was a big day as my friends car broke down too so lucky I had my car to take kids in ♥
Friday afternoon we headed to Normanville for our Family Camp.
this weekend was full on like every family camp, many fun things to do and heaps to eat etc, we had games beach fun and adventure park at the end, girls made black boards a herb pot and kites that did very well flying, we went swimming on Saturday at the Normanville beach I did get some photos but as I had my phone in a zip lock bag they look like they are done with filters due to the condensation lol very ethereal
Sunday was green-hills adventure park at Victor harbor so we also got to see the grandparents and Uncle before heading home

the only not good thing this weekend away had was that Daddy was on call with work so he missed out on all the fun but had a  nice quiet weekend home alone, with just the furballs keeping him busy lol

Monday the 14th we also had the Oncologist appointment and we got the good news that all is still stable, she is doing well ( except a few small issues like mood swings and feet issues) we have not graduated to 6 monthly scans so another major step forward and we also see 4 years off treatment at the end of November
Bring it on ♥
on way home we stopped at a small park and had a small play to relax and take hold of the good news we had been given

ponds at local park

playground at a local park

feeding the ducks at the park

moon bikes at greenhills Adventure park victor harbor

slide at greenhills

mini golf at greenhills

kids room at normanville

crab on post at beach

Normanville Beach, SA.

flying kites we made :)

beach side caravan park at normanville, SA.

enjoying life as we move forward cancer does not rule us but it has changed us,
make every moment special as no one knows what the future holds this is our journey and we are lucky to be still together  Love my Family and the time we spend together is special