5 Years out of Treatment

well we are now in 2015 and miss Alex has hit the magic 5 years out from treatment so we can officially say REMISSION :)
she is now seeing a renal specialist due to above normal creatinine levels and they have fluctuated up and back to the above normal levels so we now are being monitored for her kidney functions ( about time as we hit the 5 years with out a renal visit) Alex also suffers from Neuropathy and her calf muscles are causing issues that may lead us to casts on her legs to stretch them and at 10 she is growing so that shortens them even more but at this point is stretching exercises that we hope can help and maybe skip the casts
she also now suffers migraines so we will see a neurologist about controlling them and keeping her comfortable,
but all in all she is growing into a beautiful Young Lady at now 10 1/2 she is smart and a true advocate for Childhood Cancer
below  are some photos from our fun day with Camp Quality this month just before Alex's little sisters 8th  birthday at Bounce Australia

Camp Quality Puppets Kylie and Dean

type-rope walker

we have scans in March and should see us go onto yearly scans and oncology visits, even with renal every 3-6 months plus ortho and neuro  its getting better
will post some more photos soon and update after march next lot of scans and appointments

Christmas and new year fun days 2013

this post is big but not long as it has both CCA and Camp Quality Christmas things we have done over November and December so as not to post many small posts I wanted to do one
 we are doing well so this blog is becoming just the fun things we do as a family as we enjoy what we have and make wonderful memories, Alexandria's appointments etc will also be posted as we get to them
may we see a cure soon for Childhood Cancers and no child have to endure what we have seen many families go through ♥

on the 24th November the girls had their Camp Quality Christmas Party here in SA we went down to Glenelg and met families we have met on Family camp :)
the girls had 2 hours at the beach house ( this is where the old Magic Mountain was when I was a kid lol) then BBQ and face-painting and tattoos on the park with a visit from Santa


on Monday the 25th of November we went up to the west end brewery for a photo at the Christmas display I was disappointed in the story as it only told Alexandria's story the other young girl has Type 1 Diabeties and this is also something that should be addressed and awareness spread ♥


 Friday the 29th we went back for the brewery lights and a tour etc Santa visited again

sunday the 1st dec we had our Childhood cancer association Family Christmas party and wow that was wonderful, the biggest event we have been to so much to do and so much fun had by the girls , I love seeing them both have a great time

our last event was zoo passes from united way thanks to Camp Quality for passing them onto us, we had a great day at the Adelaide Zoo

here is a slide show with many photos from all of the events

we didn't do much in the new year went to the beach, movies etc , got reaby for school going back and cheer-leading for the girls 

Miss Robyn turned 7 and we are planing a party soon for her 

other than that all is great with us all healthy, happy and enjoying what we have together

Hope everyone had a great Christmas and new year and every moment with Family is special even those small ones  memories make your life story how ever long you get to spend with your loved ones ♥

Moving Forawrd

we have been in SA over 3 months now and getting into the regular routines except scans are due and no one has contacted us yet so we called around and things have been delayed, so some stress with that but not a big deal,

Girls started Cheer-leading training last month and love it :)

they are doing well at school to but are missing their friends as well :(


I signed up for a 12 week push body challenge just to jump start my weight loss and get me back on a healthy eating plan and so far tired and sore but pushing through with out doing to much.

we are also looking are rescuing a cat or two looking a 2 next week that need a home and are in foster care,


I am also still studying but have hit a block :( but will try get into it full on soon and also doing a photography course that has helped me out so much with learning new things and how to use my camera better I have been off auto for a couple of years now but this course is helping me with the little things that get over looked

we got in the local paper last week to and they are looking at getting Alex and another young survivor to lead the survivors walk Alex will be their youngest walker this year, plus a possibility that both these young survivors will be opening the event with the mayor,

now to sit back and hope I hear from the hospital to get scan date sorted and move forward again 

on a sad note i know 5 warriors in Australia that have gained their wings and a couple of adults too so HATE CANCER majorly at the moment :(

Hugs your loved ones often you never know what is around the corner and we all should enjoy what we have here and Now

Uncle comes visiting

Have to love being back in our home state, this weekend we had hubbies brother drop in for a visit, so great he stayed and girls get time with their uncle, swim in our little pool and have both girls signed up to do cheer leading, plus last weekend they had a friends birthday we have known since before Alex was born and we left South Australia, so been full on,
Also Alex and I got interviewed for the local paper for Relay-for-life should be in next weeks paper :)

Uncle stayed for a few days so girls showed him their school and loved the time with him ♥
we also had a small issue with health for Alex she gets alot of dizzy spells so hope its just the heat and that they will pass as the Dr keeps brushing them off

we also had a fun day out on the farm of a lovely lady and the went pony riding :)
Girls had a Ball they love animals and they miss having a pet so may have to look at getting a cat or dog one day soon

i also had fun playing with my Camera and learning a new trick with Night photography, we went to the fireworks at Semaphore for Australia day and this is what I got

Happy 6th Birthday to our little Princess

on Sunday we had a small party for Robyn, she is 6 today but we wanted friends to be able to come to so had the party a couple of days early and she had a ball :)
My Cousin Cheryl made the cake and it was delicious
4 children in total including Miss Alex and Miss Robyn,

it was a long day but a fun filled day with all ♥

this week is also the last week of the Christmas holidays ( summer time) so getting ready to start a new school and see how that goes

ready for our first part in a SA relay for Life

I have been talking to the promotional people at Relay for Life Gawler and they have used Alex's photos in their window here to show survivors etc

we are also doing a story on her and us as we are joining in this year again only for the survivors and Carers walk but also want to get involved next year with our own team or join another team ♥
We signed in to join in on the relays quiz night to as it helps them for organising the big day

Happy New Year and hello new home state

well hope everyone had a wonderful Christmas and new year as of last post we moved into our new home and state in Australia, we have finally settled enough to relax and start to enjoy it all around us
Alex shared her story with the QLD cancer council and was the face for their Christmas appeal she was in 3 papers in QLD I got a copy of the courier and Toowoomba papers but not the warwich one but I did get a pdf file to read :)



 we now have a Dr for the girls and they are ready for school in two weeks, I will have a meltdown on that day as I will miss my girls ♥

have got back into my studies and well not much else happening so will stop in when its scans etc but may be slowing down on the blog front now as we are doing wonderfully so this is really just a diary from it all to look back and see that we survived something we have seen so many not  and pray one-day we see a cure or a better way of life for all xx

Alex's story

Photos from PB added to show stories web pages and the girls this week ♥

Alex's story QCC

heading one QCC

Heading 2 QCC

Heading 3 QCC 

the hand writing is also Alex's message ♥

Toowoomba Paper Dec 2012

Courier Mail QLD Dec 2012

Jan 2013

my princess's

Jan 2013

am a little lost with all the girls friends being in QLD so Miss Robby has her birthday next week and trying to do something special for her ♥

it has been hard with the different weather down here hot is hot but no real humidity, so makes you feel very dry very quickly so water is needed, glad we have the filter as Adelaide water is high with chlorine etc so not a very healthy option and the filter we use it one of the best and not cheap but worth it for the girls health

Take care everyone and hug your loved ones  ♥♥

Moving state and starting over again

This post will be a big one as it will cover the move from QLD to SA  in December 2012

we are moving house and State, Going from Sunny QLD to the driest state on the driest continent South Australia. this will be fun, messy, stressful and exciting all together, as we change Dr's, Hospital, School. and make new friends and support network, at least I can say its a good thing Alex hits 3 years in Dec since she finished treatment ♥we had a farewell BBQ at another Families here in Brassall from the school.  last week I also went to Lunch with the Tuck-shop ladies and then a movie with my good Friends

- 29th November 2012, today we had the removalists arrive to start packing everything we have not done, we did all personal items plus everything we need for the trip down. tonight we spent our first night in Temp accommodation and tomorrow the house will be completely emptied and we spend another night so we can head out on Saturday morning. we spend two nights at the Oaks aspire

- 30th November is the last day that we will see our house and the girls school ♥

- 1st December we are finally on the road and looks like a lovely day to drive so will see how Far we get before we stop for our first night on the road. this week we had a heat wave head up through NSW and QLD so was a hot drive over the great Dividing ranges and through Warwick and we stayed the night at Dubbo and funny enough the same motel we stayed in back in 2004 when we left SA, the girls bugged us about a swim so we had a quick dip

- 2nd December today we drive towards Mildura and stopped at Parkes for the Dish after last nights thunderstorm it was a nice start and wanted to reach Mildura so called ahead for a motel with a pool got told yes all good but on arrival the pool was closed , no trailer parking and room small so we left and went to the Commodore in down the road and the girls had a swim and we had a nice View of the river Murray


-3rd-6th December, today we drive to Adelaide stopped at Blanchtown for Lunch then drive to the new house to have a look, before heading down to victor Harbor for a couple of days with the family, the girls got to meet their grandparents and uncle, plus enjoy the beach and pool table, only problem was it was cold and we only had warm summer cloths with us



- 6th December, today we moved into temp accommodation at  Mawson lakes hotel for a few days then we will move into our new home out at Gawler, South Australia, we got the Carols in the park just down from us and had a great view of the fire works for the girls to see

10th December , today we got the keys :) woohoo not long now and we will be enjoying getting ready for Christmas and catching up with everyone

11th dec we moved into the house and now we can start sorting out making it a home,

Slide show below from Photobucket to show all photos as I have hit max on this blog now so just sharing the sites and not much else, plus the photos are a little jumbled up :/ sorry ♥

special day at 36sqn

today we got invited to 36sqn for a special day for special kids, Alex and Robyn had a ball

Fire Trucks

RAAF Dogs (Puppies 7 weeks old ♥)

super hornet was there too and the C-17

today was the anual funflight that is put of for  heart Kids but was lucky that the big bosses allowed Hubby to bring us in too so we got to share the day,
Last year Camp Quality and starlight foundation also got to join in and Alex had her Photo taken for the Courier mail 

this year we got caught by the RAAF Photographers and may get photo in the RAAF News