update

we are all well
Alex had her last set of scans in October and still can see shrinkage in the remaining mass ( almost 5 year ago she ended treatment so good to see)
we have not done much at this point but Alex had Middle camp with Camp Quality in April

we got to meet some of the characters from StarWars with butts on bikes for prems and also Jimmy from Jimmy's Walk for Cancer,

we had a lovely week down at Bradley's Place in Victor Harbor thanks to CCA in July also, girls enjoyed time with family and seeing Kangaroos in the crisp morning air so relaxing and serene ♥

Girls school did the hairlarious day raising funds for CCA

Alex turned 10 (15th July) and 5 years ago we had been told that no treatment she would not have seen her 5th Birthday so special to know we are still a family standing tall against Childhood Cancer

After October scans and bloods have been told kidney function is lower than it should be so we got a referral to renal specialist Alex has slight damage to her kidney from treatment, at this point be are now in at renal every 3 months for bloods and scans just to monitor and if anything comes up act to slow down any more damage,  March 2015 we go onto 12 monthly scans for oncology though 😊

we also had family camp with Camp Quality this month a nice weekend away at Douglas scrub, fun but raw with the high emotions as we all spoke to Red Kite about our journey, which bought up more then we tell most about and hearing others stories even long term ones over 5 year gap

this is our year all out in one post but other news is we had Robyn diagnosed with Dyslexia a reading issue she is clever but can not decode words so now working on how best to help her learn her own way🔠
I am struggling with studies and looking for cord bit hard but will keep moving forward
hubby plodding along as men do with added stress

but it's nearing Christmas so positive and fun ahead even with bloods et,
want to take girls to see the magic cave and Santa yes my 10 yr old still believes in Santa 💖🎄🎅

Will post photos soon in another post with Xmas events added too

Camp Quality Events March 2014

the month of march is a hard one for us as we look back 5 years this month to the time when Alexandria was diagnosed with cancer, but she is doing so well and we have had a great month of fun, adventure.  Alex had her first 6 monthly scan and doctors visit and that was great as we found out her remaining Mass is still slowly Decreasing in size ( I do Happy Dance with the family Here)♥♥♥

some photos of Alex in 2009 to now

2009 and early 2010

2012

 Now 

March the 9th we had an fun day with Camp Quality, we spent the day learning Archery and the girls had a ball it was interesting how much fun was had by us all and thanks Camp Quality for the chance to try this.

Alexandria and Robyn's school also got a visit from the Camp Quality Puppets, they do such a great show and the girls went into different sessions and I think everyone at the school loved them.

March the 16th we had a Mannum river cruise day again with Camp Quality and I got to show the girls some of where I grew up as a child, must say it has changed a lot but still a lot the same as I remember, Mannum is a small town with 2 ferry's that transport cars across the river. we had a short cruise up the river on the Proud mary and both Girls got to steer the river boat, after we had a BBQ lunch and got to check out the CFS fire trucks and local police paddy wagon as well as a nice drive around Mannum in a modle T ford Limo
(all photos in slide show )

was also hard as the last time I was up that was was in 2009 just after my Father had drowned in that same river ♥

Christmas and new year fun days 2013

this post is big but not long as it has both CCA and Camp Quality Christmas things we have done over November and December so as not to post many small posts I wanted to do one
 we are doing well so this blog is becoming just the fun things we do as a family as we enjoy what we have and make wonderful memories, Alexandria's appointments etc will also be posted as we get to them
may we see a cure soon for Childhood Cancers and no child have to endure what we have seen many families go through ♥

on the 24th November the girls had their Camp Quality Christmas Party here in SA we went down to Glenelg and met families we have met on Family camp :)
the girls had 2 hours at the beach house ( this is where the old Magic Mountain was when I was a kid lol) then BBQ and face-painting and tattoos on the park with a visit from Santa


on Monday the 25th of November we went up to the west end brewery for a photo at the Christmas display I was disappointed in the story as it only told Alexandria's story the other young girl has Type 1 Diabeties and this is also something that should be addressed and awareness spread ♥


 Friday the 29th we went back for the brewery lights and a tour etc Santa visited again

sunday the 1st dec we had our Childhood cancer association Family Christmas party and wow that was wonderful, the biggest event we have been to so much to do and so much fun had by the girls , I love seeing them both have a great time

our last event was zoo passes from united way thanks to Camp Quality for passing them onto us, we had a great day at the Adelaide Zoo

here is a slide show with many photos from all of the events

we didn't do much in the new year went to the beach, movies etc , got reaby for school going back and cheer-leading for the girls 

Miss Robyn turned 7 and we are planing a party soon for her 

other than that all is great with us all healthy, happy and enjoying what we have together

Hope everyone had a great Christmas and new year and every moment with Family is special even those small ones  memories make your life story how ever long you get to spend with your loved ones ♥

First Family Camp in SA

the last weekend off the school holidays we had our first SA family Camp and we had a wonderful time,
2 weeks of school holidays the girls had many adventures as well, first week we had scans and echo-cardiogram done for her appointment with the oncologist {school holidays were from the 27th sep to the 15th oct as the school had a pupil free day on the Monday :) }
we went to see Turbo at the movies that week as well, Robyn missed Sibs Club with CCA though due to her having croup :( and we didn't want to share if it was contagious ♥
the second week they had a long weekend with Daddy, then Tuesday they went to the big Rocking horse, toy factory and chocolate factory with vac care, Wednesday they went to the Monarto Zoo with Vac care and Friday the movies with Vac care Friday was a big day as my friends car broke down too so lucky I had my car to take kids in ♥
Friday afternoon we headed to Normanville for our Family Camp.
this weekend was full on like every family camp, many fun things to do and heaps to eat etc, we had games beach fun and adventure park at the end, girls made black boards a herb pot and kites that did very well flying, we went swimming on Saturday at the Normanville beach I did get some photos but as I had my phone in a zip lock bag they look like they are done with filters due to the condensation lol very ethereal
Sunday was green-hills adventure park at Victor harbor so we also got to see the grandparents and Uncle before heading home

the only not good thing this weekend away had was that Daddy was on call with work so he missed out on all the fun but had a  nice quiet weekend home alone, with just the furballs keeping him busy lol

Monday the 14th we also had the Oncologist appointment and we got the good news that all is still stable, she is doing well ( except a few small issues like mood swings and feet issues) we have not graduated to 6 monthly scans so another major step forward and we also see 4 years off treatment at the end of November
Bring it on ♥
on way home we stopped at a small park and had a small play to relax and take hold of the good news we had been given

ponds at local park

playground at a local park

feeding the ducks at the park

moon bikes at greenhills Adventure park victor harbor

slide at greenhills

mini golf at greenhills

kids room at normanville

crab on post at beach

Normanville Beach, SA.

flying kites we made :)

beach side caravan park at normanville, SA.

enjoying life as we move forward cancer does not rule us but it has changed us,
make every moment special as no one knows what the future holds this is our journey and we are lucky to be still together  Love my Family and the time we spend together is special

Happy Birthday Camp Quality

last weekend we got to go to Camp Quality's 30th Birthday Party and girls got faces painted and had fun,

                             

Photos of My Kids and the cake from the party


Camp Quality do so much for many families and keep us all smiling

you can still donate to everyday hero page on side for the City to Bay and all goes to Camp Quality

City to Bay 2013

yesterday we walked with a good Family Friend the 3km in Adelaide's "City to Bay"
we walked with Giggles and the kids had a Ball even though tired,
giggles met some new friends on the way with the lion from Heart Kids and Ronald MacDonald as well as many little people wanting a wave or high five ♥

ready for the City to Bay 2013

making new friends

even girls making friends

and more new friends

girls too

and giggles handy work as he shaved my hair to no.3 

so far raised $244.10 and open til october for anyone wanting to support a great cause

Mazz & Family city to bay


we also got to go to the Adelaide show this year was not on our to do list but Camp Quality gave us the tickets for a wonderful family day out, the girls had a ball

miniture horse 

;)

girls being silly 

snakes

Miss R holding snake

Miss R holding blue tongue 

Miss A with the dragon

horror house Miss A said No Way

fun house Miss A having fun :)

giggles head taking up back seat lol on way home

City to Bay here we come

today we as a family signed up to walk the 3km and we also had hubby volunteer to wear Giggles costume for the walk so please share our link and help us raise funds for Camp Quality and awareness about our beautiful warriors out there

Thomas Family's Fundraising page

this is in September this year

below is a link to Camp Quality so you can see what they do to help families but also read posts on this blog as we have had many days of laughter with Camp Quality
Camp Quality