Counting our Blessings

today we have seen a lot of rain and enjoyed the girls first week at school.Alex loves school and both girls and having a good time.

I am counting our blessings one day at a time, as we are now over 2 years since Alex finished her chemo treatment and has had stable scans since, I would love to say we are over it and never have to deal with it again, but we are doing great, I think this will always be in the back of my mind at scan time etc but for now I see us at 25 months since we finished chemo and almost 3 years since we first heard that our princess had Cancer, I am blessed to know it should not return now we have hit the 2 year mark and I hold this tight as we have hit the first stepping stone to remission at 5 years the next is 3 years then that 5th year. I love watching the girls play together and so thankful to see them both so healthy, no one knows what it is like to watch your child go through this treatment other than another Cancer family, not being able to do anything but be there for love and support, I would have swapped shoes with her in a milli second if it was possible. but she is one very strong young lady and still says she will be a children's Doctor when she grows up ( even Robyn now wants to be a Doctor to help people)
just some photos from the last 3 years :) ♥ see where we have been and were we are now ♥

January 2009

March 2009 just before diagnosis.

June 2009

November 2009

December 2009

January 2010

Make a wish May 2010

October 2010

2011

With the Dr. December 2011

Wet and Wild January 2012

remember enjoy every moment tomorrow is unknown and anything could happen ( hope its all good for everyone and us ♥)  children grow up and people get Cancer we need a cure and one day children ( and adults) will no longer have to endure the strong treatments that at the moment save many cancer patience lives but we still lose so many ♥ to this disease 700 children here in Australia a year get diagnosed and 3 children a week lose this battle this is not good  one day I hope to see even better statistics for this battle and see many more like us enjoying the life after the battle ( even with the stress of knowing what can still happen)

Dr and scan Day

over the last few days I have been a emotional mess like always before this visit and scans as I just do not know what will happen but also just praying for the best outcome, what ever we do get we will deal with it as well we have to but its always a wait to hear as we see the Dr soon after the scans so we never find out  which is good the No News is Good news so here's hoping that I don't get a call this week...

Alex has also been fighting a cold still she sort of bumped it before we had Make-a-wish but not its back just sniffles and a sore throat so I kept her home on Tuesday feeling bad about it but she was not her normal sparky self at 7.30am she was lethargic which sets of warnings to me but she is not to bad so was on alert to make sure she stayed stable no temps etc.  I gave her the demazin I know she can have to help and told the Dr about it at the appointment,

Today we had the Dr visit plus Ultrasound and X Ray for Alex this was running late due to some tech problems so had a little wait with fasting but all was ok they where happy that it all looks good :) X Ray was clear too :) plus she had to have her port accessed as normal but due to the last attempt with not being able to draw blood out this was no issue today but as they flushed it the needle moved and fluid went into the skin which was very painful and made the port swell,. Alex loves seeing her Dr (Dr Tim Hassall)  he is a wonderful Dr/ oncologist and really treats the children great, so glad we used our private health insurance to stay with one Dr. I had a few extra questions also for the Dr like immunizations and her feet she is really pigeon toed now and slaps her feet down ( the slap feet is a side effect from chemo though) so he got the physio to check her out and we will be getting an Ortho appointment in the next few weeks and then Hydro if she doesn't start to improve, but think this will help her heaps

This week we have also hit the 6 month mark since Chemo Finished a small milestone but a milestone, so we should know soon what Immunizations are required etc and so forth, Dr Tim is sending our Dr the schedule for this so we will be crossing that bridge soon.

another anniversary for me this week is that My Mum will have been gone 20 yrs so this also added to my emotional state of mind as its 11 months since dad passed last year too.  I just wish I had them both here for the Call I know my mum would have been here to help if she could she never met her grand children ( my girls are the only ones so far) and Dad only met Alex before she was 2 and he did love them both♥

Pete also cut his hand today between the pinky and the ring finger so not a good spot but he is seeing the Dr about that tomorrow so hope its all OK,

we have also now gone to 8 weekly appointments from 6 weekly so that is a small jump but something positive for us :) I feel so happy about this as it means things are staying stabble and that we can relax a little but we must still remember that cancer is a pig of a disease that it Hides and can come back at any time, there is no cure but we just hope that Alex never see's it start again in her lifetime and that she can live a happy healthy Full Life

♥Make-A-Wish Cont....♥ Final days 7 and 8

Day 7 Friday the 14th May 2010. Well today is our last full day on the Coast and we have the silly Timeshare presentation to do in the morning (thanks to me and my blocked ear and not fully hearing what was happening) it was good and would be worth it I think but not for us. We then went and the girls got to Build a bear so they did it all Alex's is special as it is her wish week so it speaks and they named them then we went back to the room to change and then it was Beach time we spent some time down on the actual beach today too,

Girls built sand castles with daddy and Mummy and paddles with mummy, we then walked back down the surfers paradise to get Maccas for the girls then back to the room to change and pool fun. Alex made a new friend, most of the week everyone snubbed her but today a Kiwi Girl named Holly said Hi and they hit it off so was good they even played with Robyn but as it was in the pool my girls cannot swim properly yet due to Alex not being allowed in a pool all last yr but now will think about getting lessons again soon for them, took some convincing to get them out of the pool but we did so a shower to warm us all up then dinner and hoping they are out early so we can start the thing of packing up this apartment for heading home and then had Pizza for dinner.

I am so sad to see this week come to an end but will have so many photos to look back on.

It has been one very long week but we have had fun even with moodiness and tantrums lol, the girls do not want to go home but well we have to Monday is school for Both alex and Robyn and Tuesday Pete is back to work,

Day 8 Saturday the 15th May 2010. Well this was our last day at the room and well it’s been a busy week full of fun and memories, I am tired but so looking forward to getting home and sorting out washing etc uploading Photos etc

*All up we have seen Miss Alex have a wonderful week away and doing exactly what she wanted 1. Feeding the dolphins and 2 a beach holiday, she has been the boss all week about what we are doing with-in reason and she has been spoilt it was one great time for us all and **Thank you Make a wish for this great time together and memories we have made**

** Added note from Alex as we had such a lovely view she told us at the start of the week that every night the large buildings grew so they got bigger hehe we just agreed with her.

on a bad note we arrived home to the safety switch being tripped and 2 fridges and a freezer full of food Gone to waste so more cleaning that we tried to not come home to and now shopping to be done,

♥ Make a wish Cont... ♥ Day 6 DreamWorld

Here is Dreamworld from our week away and Alexandria's Make-a-Wish

Day 6 Thursday the 13th May 2010. Dream World day today Alex was asked what she wanted to do she answered SeaWorld so I said we did SeaWorld and she looked at me and said not that one mummy the one with sponge bob so she wanted Dream World it was so cute she knew what she wanted but just had a mind blank as to the propper name hehe. We had a good night sleep by all Robyn slept right through in her bed til 6.50am then got in with me she went back to sleep for about half an hour but I got up with Alex.

We arrived at Dream World at 10am and walked straight in, the girls were excited, we did get caught by those time share business’s ARGH and it was the one that owns our resort we are staying in so off to a stupid presentation tomorrow morning for 90 mins but then tomorrow is ours, but moving on from that we headed to the animal area and Vintage Cars Alex drove us in the car she loved it and we went on to the wildlife area to see a dingo, Wombat some Kangaroos and Koala’s plus birds and Croc’s we fed the Kangaroo’s then washed our hands to head on to wiggle world.

The girls loved Dorothy’s Tea cup ride and I think all up went on it 6 times may have been more as we came back to wiggle world 2 times, I was dragged on the tea cups a couple of times too. Plus we all went on the Big Red Car ride not bad hehe. The girls met Henry the octopus and Captain Feather sword and Wags the dog so we took some Photos, and also at the wiggles front door, Then we found the steam boat we had missed it so hoped to catch the later one and waited for the Steam train the girls loved that. After the train we finally found Nickelodeon so the girls and Pete went on the blue’s clues ride (Robyn was too short to go alone which she was not to happy about).

Then the merry go round after this Alex wanted the sponge bob ride but Robyn was way to small so I went with her the first time, then we decided to try for the steam boat so headed back to wiggle world through Tiger Island and got to see 2 tigers napping. The girls went on the teacups again lol and then we waited for the Boat to start loading and had a trip around the river. Robyn was getting very tired and moody by now too. We did another tea cup ride with Me in the cup with both Girls and then back through Tiger Island to catch the end of the show but missed photos then back to sponge bob ride for Alex and daddy this time while I took Robyn on the merry go round Alex then did the dodgem cars with daddy and then stingray with Daddy.

 Robyn wanted to go til she watched it start ( she was too short to go on it though) we then just walked out with some photos and stopped to get a few things then was about to leave when Sponge bob and Patrick where out so Photos with the girls then Angelina from rugrats photos before we walk out the gate and head back to our room ( we left at 4.28pm so not long before closing time, Robyn went to sleep on the drive back and we carried her up and she stayed asleep for some time it was a very long day (WEEK!!!) for us all and we have only the stupid presentation with windhams (sorry for spelling) tomorrow and some walking on the beach etc.

♥these are only a few photos from Dreamworld as I took way to many and those that have me on FB can see alot more sorry♥

School Award

well Alex was feeling better today so I sent her to school she still has a headache but filled the teacher in on her slight concussion
I stayed again for assembly and Prime time which Alex's class and year 1's as a group sang this little light of mine so cute  (I didnt video it this time as my small camera had flat batteries and the phone was not to good but did get some Photos, she also got her 1st school achievement award and you should have seen her she was so happy even Miss Robyn called out "Hey Allie ♥"

here are a few other photos from our make a wish week that are from the days I have already done

we are back if for the next scans on wednesday so hope its another no change for Alex she hates going as they needle the port to keep it accessable


*Top is Alex with her Certificate
** Left the girls with stuff from the Aqua Duck
888 the 2 below are the girls wearing the hats you get at the Outback Spectacular

♥ Make a wish Cont...♥ Day 4 and 5 Movie World etc

Day 4 Tuesday the 11th May 2010. Today is a rest day we can hope hehe, Alex was not too pushy in the morning to get out but that changed, they played with their Dolphins and watched the DVD from Sea World, Alex has been doing find a word puzzles with a lot of help from mummy and daddy but at least she is trying to learn  we went for a walk and did some shopping got some pencils and a colouring in book for the girls which was trouble as Robyn threw a wobbly and we forgot to get 2 ARGH!!!!! Plus we got Bubbles for the girls to play with at the room hehe

We met the Make a wish coordinator at lunch time, well just after in the front foyer of the Crown Towers, she was ill on Saturday and she didn’t want to share with us, so we organised another day to meet as she worked Monday and we had our busy day so decided on today, the girls said hi and then became very restless and as they could see the pool wanted to go. She mainly caught up with us to be sure we were enjoying our time here and also the main reason to see if Alex was enjoying it and well that was very much apparent in her excitement and energy lol, when she speaks and we all jump at the moment hehe how does a 5 yr old know it’s all about her this week lol,

that afternoon we spent back in the pool side with spa and swimming fun for all Alex is our water rat goes well with her water sign (star sign Cancer just like Mummy) mummy and daddy braved out the big beach pool which is freezing as well as the turtle/pirate pool and the heated indoor pool all got used at least 3 times but may have been 4-5 lol as Alex kept changing her mind but we also got to jump in the lovely spa ♥ after awhile it was time to head back to the room for shower a short rest and then off to dinner but OMG Alex didn’t want to leave she wanted to stay in the pool all day/night, we did get out though with her very sad but once back in the room she was happy to have jelly and fruit then drawing so she was happy and distracted for a little while.

Also we had Outback Spectacular that night where Alex loved it all ♥ til the part with explosions etc she hates loud noises but it was after 9pm by then too so both girls started getting tired, we grabbed a few things from the gift shop I got a T-shirt as this was more for me as it was my 40th birthday Present (LATE due to everything that happened in July last year) girls got glasses that light up at the bottom then we drove home, the girls were out in seconds of getting in the car and we missed our exit so went the other way to Surfers Paradise was cool seeing the city lights from the other side even as we got lost and then found our way by the tall buildings lighting up the skies lol.

So tired but even with the girls asleep Pete and myself didn’t get to bed til after 12 as we watched the storm out over the ocean I took a couple of photos but not very good it was too far away, this was our first late night, Alex did have a bad night with dreams and Robyn was restless but I love cuddling in with them to settle them and Robyn was the last on up in the morning (She slept all night in her bed again WooHoo)

Day 5 Wednesday the 12th May 2010. Movie world today so another long drawn out day of fun...  we arrived just before the set opening time but they had opened the gates so we went in very quickly, then walked around we just missed Tweety and bugs but got a photo of Melvin the Martian leaving, then the girls had their photo with Marilyn Monroe, then Alex decided we had to watch the Shrek 4D movie again hehe so in we go we did this in Jan when she had her birthday pass validated by My-fun so she loved it. After the movie we decided to try do some of the shows we missed last time and the Loony tunes one was next on the list so off we head to the set, on the way they got a photo with the Mystery inc (Scooby doo van with shaggy, Scooby and Fred.) and then with a smoke stop for Pete so the girls and I check out the old west cemetery and found one grave snoring and another laughing at us hehe didn’t hear that last time lol. 

Then into the set for the show was good and both Alex and Robyn got up to dance this is something Alex is not very good at unless mummy joins her, we then went to sideshow alley and Alex won a toy and wanted to ride the Big dodgem cars so Mummy took her while daddy went with Robyn looking at arcade games as she was too small. Then to the Loony tunes rides we grabbed a drink on the way, and Alex went on merry go round and then it was the river ride but only Alex and I went as they only had 2 seats left on that one and saved us waiting,

Alex was scared before we went in but then enjoyed it all, she was thinking it was the kiddy roller coaster we got a little wet , we then did the train with Robyn and mummy then they both did the mini dodgems and then decided to try have some food so went looking the girls talked us into lolly pops then we went into the Harry potter store got nothing then the Shrek store and grabbed 2 princess Fiona toys, then back out to see what next Pete checked out the dirty Harry Bar. We then went back to the rides as this was Alex’s instruction and another ride on the merry go round and then again the river ride but this time all 4 in the front row we had the back last time for me and Alex. Robyn was a little upset to get wet but loved looking for bug’s hehe.

After that we decided it was time to go and grabbed some food then watched the Scooby do show and got another photo this one with 3 super heroes Alex loved Wonder woman lol. Then we headed out grabbing a Tweety toy and Scooby toy at the gate for the girls and drive back to our room to think about what next for today or tomorrow

we also did the Aqua Duck today we did the 2nd to last one for the day, but as Pete was tired we decided to go alone he went with us to take some shots of us on the Duck then came back to the room while the 3 of us went on the drive ♥ Robyn was free so she sat on my lap but Alex had her own seat. I used the unicorn harness too as it was a busy place and only me so wanted to know I was in control a little hehe especially on the walk back to our room after sunset, we chose well as the sun set while on the water, the girls got to Drive the boat, and they get a licence to say they did it how cute. I also got photos of them driving, they really looked after us all on the cruise and loved Alex they did ask how she was as she was wearing her Make a wish hat I just said we are doing well and taking one day at a time as who wants their child with cancer to be sick (NO ONE) but we still have to deal with it. I would definitely suggest anyone going to Surfers Paradise to do the Aqua Duck it was pretty good with all the sights and info about the area.

Back at the room I had a lovely bath something that I really needed as I was so drained then had the girls join me, and then dinner Alex was out soon after these days are really taking their toll but she is defiantly having the best time and well if we say no do we hear about it lol ( we don’t as this is all about her plus when she wants something Robyn backs her up and they gang up on us so cute to see them united and sharing so much )

A Happy Birthday to my MIL (Peters Mum) and the girls Grandma in Victor Harbor South Australia

♥ Make A Wish Cont... Day 3 Sea World

Day 3 Monday the 10th May 2010. This is our SeaWorld day and Alex’s big part of her wish to play with the Dolphins. She also said a beach holiday and as we are staying at the Gold Coast “Surfers Paradise” how close to the beach is she. Can see it from the balcony, we all got up before 7am and Alex wanted to leave straight away but as the park doesn’t open til 10am and we have been told to be there at 9.45am we had to distract the girls for a little while and well this is not an easy task with a 3 yr old and Alex 5 almost 6 yrs old.

We arrived at the park at 9.25 and lined up to wait out our time Alex was so excited I expected her to be scared when we actually went into the Dolphin pool, we finally walked through the gates and made our way to the info check in area for the animal adventures etc and lined up yet again but not for long then we paid for the DVD so we could see it all and then got Alex and myself wetsuits in a Nice pink SeaWorld Bag then headed out into the Park.

First stop a drink bottle for us and the girls plus buy it this way we got free refills all day so the girls got a polar bear bottle and we got a standard drink bottle but with SeaWorld on it. Then we slowly walked down to the waiting point for all the animal adventures Pete sat with Robyn while Alex and myself got dressed into our lovely SeaWorld wetsuits, then back to wait with all the others, we also took a few photos of the penguins and another lady asked us to take one for her , the first trainer to arrive was counting us all then noticed Alex and so checked her band and said no we are a different group ( alone not a group) so we wait more while watching a large Dolphin swim around the pool right next to us.

Soon another SeaWorld worker asked if we were the special needs and I said Make-a-wish so he said that would be it and that we could go down and wait by the gate til the trainer etc where ready for us. Pete and Robyn also got to come in and we were told that others will want this but as most are 5-6 kids at a time they cannot do it with them as add parents and sibs it would be very confusing on the dolphin, we walked in the gate and then got life jackets on and slowly made our way to the water edge, Alex had no fear she was so excited ♥ we finally got into the water and met the Dolphin friend for Alex, Zack is his name and he is one of the biggest at the park.

She got to pat him and play ball, do some tricks and also tickle him she also danced with him and sang with him lol. Then they splashed each other and me lol, at the end Alex had her Photo taken with Zach all on her own, then the trainer took one of us all (yes all 4 of us) and just at the end Robyn got to part his tail and play ball too she didn't miss out on any of it, (Thank you Make-a-wish and of cause SeaWorld and Zach for a great experience it was wonderful.)

After this we went to the showers and changed, we had decided to take the wetsuits back but found out the dolphin show was on so went to watch that first, it was good. Then we took the suits back and went to sesame street beach to have some rides they went on them all except one that was closed, and as Robyn was small Pete and myself also had to ride, hehe was funny seeing stretch in these small rides ROFL.

As we walked out they had the sesame street show on so we watched that and then watched the fish detectives (sea lions and OMG this show is so cool both girls didn’t budge and as we are now after 2pm they had the itchy feet and moodiness happening so was good to sit down watch a show with the girls loving every bit. We also went to check out the sharks and polar bears.

We finally had a couple more rides then went to get the DVD, Photo and some extra gifts before finally heading out the gates at 4.10pm one very long full on day for us all. We got back to the room sorted out dinner and then bathed the girls who went to sleep by 7.30pm, Alex got a lovely PINK Dolphin stuffed toy and Robyn got a small grey one they both got a bowl and plate plus one snow globe between them so all up one very long day but one very happy family we have this to always look back on.

Happy Birthday to a friend in Adelaide Kim hope you had a wonderful day

Day 1 and 2 ♥Make-a-wish♥

Well here we are home after our week away at the gold coast QLD Australia, Alex was so excited we have been counting down to the day we left home, we did not expect the disaster zone at home though  ( nothing to bad just the power switch  tripped and all our frozen foods went to waste and stunk the fridge and Freezer out so we have been cleaning all day today so we can fill it again but the smell is still there even with Bicarb and Vanilla Oh well on a good note here is Alex's week starting with days 1 and 2 and yes she had a wonderful time we all did really :)

Day 1; Saturday 8th May 2010.  Well today has finally arrived we head to the Gold Coast to get room key at the Crown Towers we have a lovely 2 bedroom apartment with a great view, we did all the cleaning etc at home so that while away it would be one less stress and something not to stress about when we get home it was a long night as both girls where excited and running on adrenalin well so was Pete and myself ROFL Our first day at the Gold Coast was for Alex’s Make-a-wish.

 We drove down and arrived a little early at accommodation and the Gold Coast as Alex had too much excitement to stay at home. We went for a walk down the road from our room for the next week. (Crown Towers up on the 17th Floor.) We did some shopping like shoes for Robyn (she took them off just before getting in the car and they were forgotten til to late, rash vest for me and just food for the apartment to keep us fed for breakfast and snacks. We have a view of both sea and River so very nice and after our walk we know where the Aqua duck and Build a bear is for the days we are not doing the theme parks. We also went and checked out the gaming room Girls could not do much to their size (too short) then a lovely walk around the pool. We also have Indian for dinner. The girls both run themselves ragged which resulted in headaches for both Pete and myself but found a shower fixed it for us and a bath for the girls then we just watched the girls play (full-on lol) both girls were so tired by the end but still did not want to sleep and now at 8.50pm still up but very tired so waiting them out Alex crashed at 9pm but she had a headache and panadol was probably a good help with her sleeping, then we just waited out the crazy 3 yr old lol ( nah she is good just a typical 3 yr old lol and very full of energy so different to Miss Alex at that age who was such a dream toddler then she was diagnosed.)

Day 2; Sunday is also Mothers day. 9th May 2010. “Wish a Happy Mother’s Day to all you Mummies out there “. Another day with 2 excited girls and as we promised a pool (swim) to Alex who are we to not give her that as this is her wish week and it’s all about Alex, she always says she is sharing with Robyn so it’s cute to see them enjoy every bit together. Alex woke me up with a special Happy Mother’s Day how sweet when we all got up she gave me a present she made at school and as I opened it and read it all out I started to cry. It’s one of the hand print sayings and will be cherished by me, rest day NOT lol will not happen with my 2 hehe but that’s cool we are here for the week and have to enjoy it all.

So as soon as everyone was up and breakfast had been eaten it was pool time as Alex wanted everything and how do you tell a 5 yr old that we are here for the week and will be busy every day, and she will get tired quickly  so Game room and pool today, lucky it’s a indoor heated pool as its cooler today and over cast not cold but we do not want colds we spent a few lovely hours in the pool today and then Robyn started to shiver so back to the room for a warm wash and lunch. Then a walk to check out the Aqua Duck and Build a bear but both where busy being mother’s day so have decided to leave that til later in the week when most are back at school.

We ended up going down for an ice block (paddle pop hehe) and then off to King Tutt Putt Putt golf for some time wasting Pete also had a cocktail at the bar belated Birthday for him  we had Thai for dinner too very nice,

* please note this is posted after the week away as I wrote it all down and posted when I could get online*

Day 3 will be posted soon

Make-a-wish presentation

Well the day finally came for Alex to be presented with her wish details etc we got the call on Tuesday afternoon the 4th May. Ian the Volunteer arrived around 5pm he came to our house with tickets and a parcel of special stuff for Alex.the girls got a bucket hat each and Pete got a Cap. Alex got a lovely turtle who is all ready packed away for the trip she wants her to join in on the fun.

here are Photos Of Alex getting her wish package she was so happy and even now is still wearing her hat and Pin lol♥

today alex's Class at school also got up at Prime time to sing a song so cute I did video it lol  no real singing as they didnt have the  CD up to help only piano back up :) but so cute ♥

As this week was a short one for us here in Ipswich Monday Labour day public Holiday and Thursday is the Ipswich show day alex only had 3 days at school and we did what we could to make this a special week.
she still has her cough and temp are border line but so far not to stress The Dr wants us to enjoy our trip and at first thought we were flying out but when we told him no Gold Coast we were in QLD and really closer to the RCH if need be he said wait and Ride it out as if something comes up we do something but to enjoy as  we are still in the unknown.
Alex enjoyed going back to school and wednesday being my me day I got all I thought we would need ready for saturdays drive and also food we would need for the girls, snacks etc... so one less thing while away but at least in appartments (penthouse style) we have the means to cook at the room. thursday I got to go back to belly dancing to as missed 2 weeks due to sickness and next week too due to being away, so must catch up heaps lol, this was fun and we had a different teacher (the owner who is also in the semi finals on TV's Australia's got talent hehe) 


A week on the gold Coast is on our way and 3 theme parks to look forward too Dream world, Movie World and of cause Sea world with Alex's Dolphin experience, we are now looking at what else we can do while down there Aqua Duck is on the list and so is the outback spectacular Dinner has been booked as this is what I wanted for my 40th belated but still fun plus Alex and Robyn both love horses as much as I do so well worth it, plus Putt Putt and alot of beach time, lets hope its nice weather with no real rain as Movie world the last time was raining

Stupid Colds

well Alex has had a cough for a few days but lucky for us No temps them Robyn got it and now I have it too  nice to know they love me enough to share lol, we are suppose to have the Flu shot this week but will call the Hospital and see what we should do and what side effects will be as under 2 weeks for Make-a-wish so we don't want to be ill for that either.

Alex is not  going to school  as i am trying to see the Dr and as her immunizations are not updated yet,  i am to keep watch on her temp and fluid intake and its emergency if that changes ...Robyn may miss Child Care tomorrow if she is still sick but she seams fine this morning  ( Lucky her lol) me I want to crawl back into bed but every night I spend over half of it with Alex as she wants to sleep with Mummy and Robyn is in Mummy and Daddy's bed almost all night ARGH, so I am thinking need some warmer jammies hehe so that when we get another cool night I am not freezing running around the house

Update on the make-a-wish well there is no new news yet but we will have all the details before we leave, we are waiting on the itinerary to know what we are doing, dates and so forth we are looking at doing a few things while down there to make it great for the Girls ( Outback Spectacular is a MUST hehe and the Aqua Duck so far and the beach even in the cold ROFL build a bear too these are from friends telling us how to enjoy the time with things they have all done  Thanks guys we will be kept extra busy I think but will have so many memories to look back on :) )

Photos just of me trapped in the trampoline with the girls hehe they wanted me to stay so attacked every time I tried to escape lol

☆♥~ keep moving forward ~♥☆

Well we have not heard about the CT Alex had on Wednesday so am hoping it is "No News is Good new"  but just as I started to relax last night, Alex had an accident she bumped the port-a-cath that is slightly red due to the tape they use ( she is now showing signs of a allergic reaction to it ARGH)  and it was inflamed so me being me stressed we called the after hrs No. for Banksia and they said to watch it and her and bring her in if it gets bad or temps start to rise, Hubby just said I was being silly and almost started a fight but I backed down and walked away trying to stay positive as the last time he said that it was not gas etc but CANCER!!! and I will always stress about the girls health after this.

Sorry needed to vent

Now back to me positive looking at a wonderful time we will be having in a few weeks for Alexandria's Make-a-wish with lots of love and hugs and hopefully some relaxing times for all.


have been going through old Home movies we got the video camera in Sepetmber 2004 so its good to look at Alex as a 2 month old hehe have decided to burn them to DVD so as they are only VCD have been busy but hoping it works

Let the Count down begin

Alex's Make-a-Wish is now in 26 days and all details are in we will have a special day when they come around or meet somewhere special to present her with it all :)
we will try keep focused on the good time we will have soon. with Peter's Birthday  in 25 days and Mothers day is in 27 days haha a good week to do things :) we plan to do the Outback Spectacular as Alex loves Horses ( Just like her mummy lol and Sister so thats a family trait in my blood haha) this will be all the birthdays etc we missed last year ( My 40th Alex's 5th Peters 36th and mothers day and Fathers day all together Miss Robyn was the lucky one hehe being before and after treatment so we did something for her but she will also be involved ♥ would never make her miss anything as she has also suffered in her own way like everyone in this family)
I have also been told I will get to do the dolphin part with Alex :)

Alex also has her CT on wednesday the 14th, only 2 days away, with a Visit to Dr Tim Hassall as well Alex does love her Dr :)  even though we are only in there every 6 weeks its still something I hate doing as I just wish it was gone with no chance of return but No.  she hates port access etc as she has such a big break and screams the Banksia Outpatience Oncology dept down I know others do to but this is My big Baby Girl and I hate hearing her upset. this is something I am not looking forward to but think it will be good and no growth well I must stay Possitive. this is my new motto to stay possitive and hope it attracts good and Possitive as I have been having bad dreams and well so has Alex :( but hers are kids dreams about things she dont like (Bats, Monsters etc hehe we have bats fly over here every night lol) so the other night we had all 4 of us in one bed OMG what a squishy night but was great to be so close, Alex hates it if I go to far she has become a real Mummy's Girl wanting me with her for everything which can be hard as Daddy can not deal with Robyn :( I so want to be there with her though like every mother ♥

Pete had a mate from NSW well we knew him there but he now lives in the NT come around Friday night the 9th April was good to see him and to see Hubby relax some as he was able to talk, this guy is a father and was unsettled at what Alex had been through but well it Happens and we have to live one day at a time and move forward, what else do we have,

so we can now officially start to look forward to Alex's Special week and make lots of great Memories for us all Even Robyn

* must remember to charge batteries for Cam corder and Camera hehe as need lots of Photos for family and friends in SA that miss out on everything

update on us

well today I have kept Alex home under oncology advice as the school has had 3 confirmed cases of Whooping cough and the last was in her class she was happy to stay home though,, but in saying that I feel like an idiot keeping a well child home when so many say WHY she is not a baby or at High Risk??? we have 3 months before they will look at updating her immunizations so I can be over protective plus what if she gets very sick its hospital still for us

Tomorrow Alex will be having her photo taken with her Daddy for the QT  daddy will be in full dress uniform too, (RAAF) with the team that is doing the Relay for life (RAAF Team)  her story is to show that this can effect everyone at any age even a 4-5 yr old Child, I will be getting a few papers to send to family in South Australia, plus keeping one for our family scrap book and hope to get a scan or web photo to post here ♥

we had no rain today too first in a couple of weeks hehe my poor washing lol...

ok only a small update, I am still having stress issues and think I am losing my mind some days, just feel like crying and hiding away but both girls are also extra clingy to me no idea why either but every day I hug them close and am thankful for what we have,

I have also started to look at all the positive in this year so far it is

* no Chemo

* Alex has Hair

* No more blood tests unless she is sick still have port accessed every 6-8 weeks though

* Alex is at school and loving it

* I Finished my studies and got mostly {HD}

what we have to look forward to this year

* make a wish week on the Gold Coast Alex's dream time

* immunizations updated ( not a good thing but will give us peace of mind)

* port removal near the end of the year ( this is a good sign that the Dr is 100% happy with test results and no growth in Lymph Nodes(Tumors on aorta)

* actually celebrating everyone's Birthdays as we had no time or was busy last year with it all

* Camp Quality we will be trying to go at least once a year to something and hope to get to a camp just to get out and meet others in the same situation for the camps plus the girls get the kids camp, they offer special events through out the year so far only been to the circus,

* having Easter Fun as last year we got home from Hospital on the 1st April and Alex hated Chocolate by then :( she still don't eat much sweets but at least it will be a great weekend after the one last0 year still getting use to what we had been told

there is more but this is something I keep looking at and saying 2010 is our year to move forward

now that I have finished my studies I am going to get stuck into learning photography for myself and fitness for my health these are small goals it keeps me focused on other things to help me feel human some days stupid I know but that is my new life...

22nd March 2009  I took Alex to the Dr about  a lump after which we where told was a Liver Tumor by the Dr but after a ultrasound the next day 23rd March,  and them wanting to do a CT we knew it was not good we got told to go straight to the Brisbane Mater hospital and stayed in outpatient there til 8pm then went to RCH about 9pm and was admitted to Banksia at The Royal Children's Hospital Brisbane and started chemo 4 days later after surgery and biopsies know wonder I am losing it thinking about this month last year

My EB easter signature

Childhood Cancer Event Sponsorship "Tour Down Under"

Hi again well I have a friend that's dad is doing the tour down under this week and would like sponsors so if you can help this great cause  please follow link then scroll down to "Ken Hughes" so many children suffer cancer and even the smallest thing can help search for a cure ♥

childhood cancer event

also we got a call today to say we are penciled in for early May for Alex's Make-A-Wish so it will be around hubbies birthday the same time Alex was to have her surgery last year but was ill so had a week delay  but we will have a happier year with lots of wonderful memories to look back on too, this year is really starting to look bright for us  and I dont want to jinx us or rub it in to others but just wanted to share our happiness  ♥♥

*~* For want of a good weekend*~*

Well the weekend is here and I am staying positive trying to not let others get me down this world gives everyone something to deal with and we need to stand tall and work out how to get through it these are always hard but its life and we have to deal with it and can not throw blame on others.

Yesterday Miss Robyn climbed up the computer chair back and was trying to get something from the bench when tragedy struck she went flying big time and now has concussion ( and we had a almost 5 hr wait in emergency dept here in Ipswich)  I think I panicked more then I needed to but after what we have been through and seen I always do with both girls

Today I am just going to rest as I got home at 6am Hubby got up after a small nap to keep Alex entertained while I had a small sleep with Robyn. Robyn is fine just headaches and I have to keep eye out for some small things and big ones too over a 48 hr period from incident... suppose I have given some dirt for my sister to use by Robyn getting hurt she always thinks I am a bad mother, plus as we have Make-a-wish coming up something else we have taken advantage off ( but its funny as Alex would not have got it if she was not entitled to any of this)

Hubby has decided to do the RELAY FOR LIFE this year so will be chasing donations for the cancer council once his registration goes through. I wanted to do it as well but have decided on the pink run in may :) we are giving back to the cancer societies even as we still use them :)

CT and Dr's Visit Wednesday

Well yesterday, Wednesday the 13th of January Alex had her CT Scan with Contrast, it was an early start for us all Robyn went into Child care for the day as I would be alone at the hospital with Alex and as we also had to 1.30pm to see Dr Tim. all was good except Alex has lost another 300g so not good but she is healthy and seams like so many others just has gone of normal food so will be supplementing her milk with pediasure to give her the added vitamins at least :)   we also are now off all meds WOOHOO no more making her take them hehe now she will only get panadol if she needs it lol OMG the small things that make ones day and today had a few lol♥ plus the contrast she drank with out any fight  my little girls growing up to fast :(...

The Dr has filled me in on the next step if the nodes start growing again as he and us would have loved to have seen them removed with the Kidney. but we have to wait and keep an eye on these nodes to be sure that they do not grow and IF ( I say IF as we pray they don't) we will be looking a surgery again to try removal or part removal but that is something I do not want to think about right now.....

on our way home Alex wanted Hungry Jacks so I stopped at the one on the way home in Brisbane and the manager remembered us and gave us our meal free ( I didn't expect this was so nice ♥) he also asked how we are doing and wished us a belated happy Christmas and New year how nice can people be ♥

Robyn  enjoyed her day at Child care and is now going every Wednesday something that will hit our pockets but will be good for her and for me :) I can not believe Miss Robyn is 3 in under 2 weeks :o

we have had a few fights with the girls too Monday and Tuesday Miss Robyn pushed Alex out of the trampoline this being the 2nd time Alex has fallen out and hurt herself this time hitting her head and grazing her back so I was on watch that night for concussion etc but she was ok.

Today I have been told by my sisters boyfriend (who she says isn't her boyfriend) that I have lied to her about money from dad I have all the receipts etc and will only deal with public trustee not her as I have no money and used none on me or my family it went on the funeral

But on a better note Alex has had her wish Granted and this will bite me on my butt as my sister will say I used dads money for this trip !!! ( sorry for Vent am so pissed off at it all am trying to stand strong for my family)

 So we have done papers to be sent in and looks like she will get the dolphin experience I was at the end thinking we would have missed that part though :( but so happy she will do it and we will get the photo to look back on, Robyn wanted to go for it to but she would still be to small so when we leave QLD I will do the family one for us all as an experience to remember :)

top  :- asleep on lounge

above:- at the hospital after CT waiting to see Dr's

left:- at the wonderfactory at the hospital still waiting.