Tuesday, May 19, 2009

Chemo & Surgery Road 09




well here we are following the Cancer Road with Miss Alex, she is doing well we were booked in for surgery on the 7th had last Chemo on the 30th April so on the 6th we went into the hospital for a check up ( I was worried as she had a cough that had been hanging around for weeks) they took bloods etc and said all was good so home we go to return the next day at 7am for admission and surgery.




Thursday the 7th we get up at 4.30am get the car packed as we are staying in Brisbane, 5.30am get the girls up and in the car, off we go get caught in traffic but arrive in time. do paper work for admission and then head up to the Surf ward to wait, the anaesthesist and surgeon drop by and well Alex's cough had now become a rattle in her chest so we get put into an isolation room til they get results back to say she is not contagious, we stayed in that room for 2 nights then got moved to the Oncology ward to finish the antibiotic's ( Alex had a reaction to the first lot ) on Monday we finally get told we can go home, so we get everything sorted to do it all again on the 13th and 14th,


14th comes and we are again up at 4.30am and ready to go no traffic issues this week and get there in time not long waiting either Alex goes down for surgery at 845am to Have the Nephrectomy ( Kidney removal) I take her in dressed in blues ( just like Hubby was when we had the C-sec for Alex ) she is asleep in seconds and I break down :( we decide to go get something to eat as we all skipped breaky with Miss Alex. it was a long wait and we took car to the Room miss Robyn and I would be staying at this time its Leonard lodge like last week, we then go back to the hospital and wait in the play area Hubby has a snooze ( sort of ) and I watch R play the surgeon arrives after 3-4 hrs in surgery with Miss Alex and fills us in on what happened " it was a tough job the tumor (Kidney) was huge and had hidden veins and they also had to remove it of the liver, these tumors like to stick to other organs etc, she lost the right kidney as this was the tumor the right adrenal gland and a small part of her liver. (Radical nephrectomy) they went after the Lymph Node tumors and well they had attached to the aorta(sp) and could not be removed as she would have bled out :'( this made me cry to think how close she was they did take biopsies so they can try to kill these cells off so she will be Cancer free? we then get told what may be the next stage ( chemo and radiation therapy ) its going to be a long road but as we are a family we will see it through. Miss Alex was in ICU for about an hr so we went and got room key and unpacked food from car etc then went back to see our beautiful princess waking up. she has a nice scar that is 4 inches long to what we can see under

Miss Alex Just after Surgery still out of it with tubes everywhere



She had tubes coming out all over and was beeping she was groggy for the rest of the day and they kept her this way to prevent her moving to much, Friday they got her up which we didn't think was possible but she was happy to be moving around and Saturday they removed the IV and catheter she could get up and go to the toilet on her own ( with us off course ) and go down to the play room we also got moved out of HDW to SURF room with 6 beds and nurses in there all the time, we had been told we could possibly go home on Sunday so was something to look forward too, We also had a Visit from an online friend (womby). Sunday morning was good Alex was her normal self Telling miss Robyn off hehe we also got moved again as our bed was needed for someone that needed watch 24/7 so to a 2 bed room we go, we didn't really get to stay long in this room as they let us go home :) Alex was ecstatic about that.

we have to go back on Thursday to see the Dr. about the new protocol and may get some biopsy results to. but its so good to be home again, know its a short lived thing as its an unpredictable time we have in-front of us but here's hoping the next 12 months we don't get to many more Hospital stays, we are now also looking at what to do for her 5th Birthday know it wont be much but hope its something special just for her (and me its my 40th as well )


added extra: I was under extra stress during the last week as My uncle has come down ill too ( My cousin Cheryl is like a sister and best friend in one) If we didn't have all this I would have been in SA to be with her and the family in this time, a heart attach and then possible diagnosis of Cancer too (lung) just hope they all know we are thinking of them

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