Saturday, May 30, 2009

week 2 of new protocol



Right: wanting hugs from everyone
below: giving sister a Big Kiss♥

well Monday is tomorrow and the start of the big doses again she will be so sick after this and will probably go off her food again :( she will even go back into pull-ups for a few days as she hates having accidents, I wish there was more I could do to help her through this tough time, I have a fight to get her to take her sickness meds before we leave and we will be at the hospital tomorrow from 8am til unknown time (probably after 4pm) so little miss Robyn will also be full on. That reminds me must charge the portable DVD and change the leapster batteries as well as sort through my bag of goodies to make sure we have snacks she will eat and things to entertain them

 A beautifil Princess enjoying some fresh air before it rained

The Royal Children's in Brisbane is great though they have TV and games plus a great play area in the waiting room some children on the lighter chemo's get to sit out there, we don't get that chance due to the chemo she is on. the staff are wonderful and dealing with these special little people every day must be hard,
This week we also have to stop into Radiation for a Play session to get Miss Alex use to the routine that will start on the 10th, I will be dropping Miss Robyn into Care that day so it will just be Myself and Miss Alex going in, but on the 9th it will be Miss Alex and Miss Robyn for the last play session and then 20 days of Radiation with both, am glad we have worked out accommodation for me and the girls in Brisbane as traveling every day with car park and fuel would not be easy on the budget :S,


Miss Alex has a slight sniffle this morning and I am hoping its not the start of a cold, Miss Robyn is the same, Miss Alex decided 6am was a good time to get up today and now is annoying Daddy to play star wars lego on the Xbox, he is not happy but abliging her, ARGH think I spoke to soon now she wants Mummy lol, OK must go entertain the girls while they are still quiet will be back later with more


2 comments:

Sally said...

I will be thinking of you and your DD tomorrow.

Thanks for sharing the beautiful pictures. She has a sweet smile!

xoxo Sally

Unknown said...

Thanks she loves the camera even now