I am a Childhood Cancer ADVOCATE

I am sitting here after today Biggest morning tea at the local shops, and well it is good to talk to others that understand wheat you have been through or are going through.

today I met a lovely mum who also knows about Wilms Tumors and Childhood cancer, and she also sadly lost her daughter to Wilms 20 years ago ♥ she was kind of worried about telling me this but I am glad she did she knows what we are going through but she is happy to see us on the other side with a survivor ♥

we swapped numbers as she lives close by and we may see each other at the shops occasionally

I will always stand strong about Childhood Cancer and felt bad last night as I said NO to the Deaf and Blind society for their raffles yes I also told them they do a great job and I know where the funding goes as we have been on the receiving end of a different charity ( Childhood Cancer) but I can not give to everyone when we ourselves are still getting back on track ♥  I have had to stand strong about this and now only support Childhood Cancer  things like CCIA, ( Childhood Cancer Institute of Australia ) we donate monthly to this one and the Clown Doctors we also donate monthly to this, I also get involved with Logan's Run events to support Working wonders ( think it has changed its name now though)

am signing up for the marathon ( Bridge to Brisbane in September and Hubby is going to see if we can get some of his work mates involved

Health Scare

This Last week we had a scare with Alex she has had pain in her tummy when she needs to go to the loo. this is not good as she only has the one kidney and due to her history we had to get it all checked,
we had alarm bells ringing as it could have been a relapse but we were holding tight that it was a normal UTI, she had tests and they came back the first time clear, Ultrasound ruled out any thing that would suggest relapse but still no answers, today we went back and the Dr tested again and found acidity in her urine ( sorry about to much info ) and bacteria so he thinks it is a UTI and also her bladder is inflamed so we have her on Antibiotics to help her get back on track she is only 7 and a cancer survivor so we do need to make sure her remaining Kidney is OK and not at risk.

A big Sigh of relief and hope she improves now, but we do know what next if she doesn't get better by the full course of antibiotics

we are due back in the RCH in Brisbane next month for CT to be 100% sure

"also remember that this last week 3 years ago was when we watched Alex have her kidney removed and also found out about the inoperable tumor near the aorta, just lucky it didnt get to close to the heart so she si still fighting strong ♥"



"yes I have re done this as have had a few strange posts about this it is a child with Cancer she is a Survivor I am a crazy mum posting this but it is her journey, I do this so anyone with a child with cancer knows we all go through the good and bad days" 

flying kites in back yard

out front with kite

Family Camp 2012 with Camp Quality

this weekend we spent with Camp Quality for the Family Camp up on the sunshine coast at Maroochydore. this is our first stay here last year we went to Noosaville and had a ball.

On Friday I kept girls home as it would take us a couple of hours to drive up and would be nice to go early and do the sites , so went through Nambour and checked out BliBli Sunshine Castle, room was available from 2pm so checked, once checked in we went to the super market as Robyn forgot her thongs (AGAIN it happens every year lol) got a couple of things we needed and then braved the pool. it was freezing and I almost tried to kill myself and the girls :9 I walked off the edge into deep water with both girls holding me ARGH scared Robyn but kept them safe and got my toes on the edge til Hubby could jump in to help ( he made iit seam like I did it on purpose to get him in to try calm Robyn down as she thought Mummy was going to die :(*

Sunshine Castle Bli Bli, Sunshine Coast Queensland

Saturday we had a lovely River cruise up the Maroochy River all the way down to the mouth ( just inside the mouth as it was low tide and the coral sea beyond. we then went back up the river to see the Castle from the river and a little further up stream so a beautiful day on the water, morning tea was suppl;ied and then back to the resort to get ready for Lunch at the Maroochy Surf Club on Alexandra head, back to the resort and pool and massage time :) AHHH so nice  (not the pool it was still freezing to get in lol but nice once in, then the girls played in the playground, bouncy pillow ( yes it was like a pillow no ides etc but still fun) then BBQ dinner and  then a Movie under the stars Smurfs, by this time Alex was very tired so we went back to our villa and had an early night.


Sunday morning was Mothers day and the camp fairies left a small gift of a rose, and chocolates with a card ♥ I also was told happy Mothers day by everyone before 5am hehe this happened as Robyn climbed into my bed at 4am and I went in with Alex at 5am so they all said it so cute. and we got a family photo and a silly photo done in the morning before check out at 10am.

we got to go to Underwater world so this was great :) as have neven been before and enjoyed the seal show and the otter show, plus a lovely lunch provided by the under water world team Thanks
we then decided to head home I was exhausted and just wanted to relax

we also met a couple of families we know ( online or have met at other events like relay and CCS) and was great to talk plus other families on their first camp so was great just to talk and get to know them, I met one family who's son is a wilms kid lower stage than Alex but was diagnosed at 7 months and his scar is bigger than Alex who was higher stage and still has issues but so good to know kids keep growing and going on with life ♥
decided to add a slide show from Photobucket as we have so many photos from this weekend enjoy

   

PJ Day May 7th 2012

this year I signed up for PJ day I also wanted to go to the PJ night last night with some other Oncology mums but Hubby was on call all weekend so we did it our way at home and around home.


here are some photos as we have to be silly and have fun in our PJ's all day lol

Haig street Park and quarry this morning went fishing and played in playground ↓

In back yard playground with Girls early this morning ↓

the weather was lovely and the girls had a ball. now asleep as school tomorrow and poor Robyn had another night terror episode and is now settled in for the night I hope.

I am doing work experience at the school for my studies tomorrow (Cert 3 educational assistant) and we have camp coming up soon to look forward to so may another fun filled month

today Is Hubbies Birthday and this time 3 years ago we had to be at the RCH at 7am to check in for Surgery, this didn't happen as Alex's Lungs didnt play nice and she ended up on antibiotics and neutrapenic, so was admitted for 5 days til ther counts rose and then we went home for 2 nights and back in on the 14th to go through it all again 

Logan’s Run Event 2012

Logan’s Run Event 2012

I have signed up for this and it helps oncology kids which are working on Brain tumors and other high risk Cancers our children could be hit with ♥