Showing posts with label CCS. Show all posts
Showing posts with label CCS. Show all posts

Thursday, November 22, 2012

last Dr and Scans for QLD for us :(

Yesterday was Alex's scan day it was bought forward due to us moving and Dr Tim being on holidays later, we had to sort out scans and stuff for transfer to Adelaide for the new year

Alex had an Ultrasound and Chest X-Ray, all looks good so that is good to hear

this was our last visit to CCS and to the RCH  and a sad day when you get to an end, but also a Milestone that Alex is now 3 years since she finished Treatment next week

we have scans etc to pass onto the new Oncologist we get once we are in SA




Today Robyn got an award from School for always being helpful ♥ and Mummy had to be helpful and step back into Tuckshop for the day as they needed an extra pair of hands and I have helped all year with no issues so was nice :)



Thursday, September 6, 2012

September scan day


Yesterday was Scan day again
Alex had an Ultrasound and Chest X-Ray and all is still stable so last night we celebrated that she is a very Healthy and Happy 8 year old ♥

we got to the hospital and got to see the st George people present a check to working wonders for the Floe circus and also Happy Dragon. Plus a Flea circus but we had to leave before it really got started due to appointments :(
we had a quick visit at Radiology but as Alex has had a Bad Cough for a few weeks I grabbed a mask to protect other kids just in case, but she gets this cough 9 months a year with no other issues and have been told it is possible that it may be something we will have to deal with later but why worry now as well we can not do anything about it right now til it shows itself and we are just trying to enjoy what we now have and get back to that New Normal


Robyn and Daddy stayed home as they were sick but they did a Pirate flag ready for Talk Like A Pirate that is on the 19th of September for CCS (Childhood Cancer Support)








Saturday, August 18, 2012

The EKKA 2012

well we got lucky last week and ended up with Tickets to the EKKA I was not going to go and Hubby didn't but with tickets I took the girls, all thanks to CCS ( Childhood Cancer Support)
we had a police escort to the show grounds with 6 taxi bus convoy and they gave us a list of rides we could go on with out badges so no money out of pocket for that, also they supplied lunch and the girls got show bags, and a companion each to enjoy all the rides and for me to enjoy the day and snap all the photos I could get
But I ended up being the cart horse, although I enjoyed it as much as the girls

this is our last year in the state so was great to get tickets to this event before we leave so we can look back on the fun we have had even with the stress and all the other things that came before it ♥



so far I have been up since 5am and feel tired but still running as girls had such a wonderful time.
Tomorrow Ipswich have the free day at the railway museum for the local residents and so we are off to do that as again it will bee our last you can see in past posts this will not be our first but still a great day even in the warming QLD weather

Sunday, April 1, 2012

our First CCS camp

this weekend we had our first Camp with CCS we went to camp Crystal
CRYSTAL its what is in the name that counts :) -  "Cancer Related Youth Time Allocated to Laughter" 


this weekend we met some old and new faces we have seen over the last 3 years and enjoyed the weekend full of fun with the girls :)

we took the girls down on Friday and they missed the last day of school term but we did have MacDonald's for brunch on way down, then headed to Aratula then inland to Thompson farm and over the bremer river to find our camp home for 3 days,





friday the girls got face painting and painting plus playing in the sand pit, that night they toasted marshmallows on the fire while talking about Yowies :)
Saturday we went out in a 4WD and yes we went bush bashing litterally wow the adrenilin pumps hard then but it was awsome ( Alex was a little scared) we went up and down steep banks and through rivers, but also got to see the wild side of the property :)... we were one of 2 cars that made it up one hill but we went first and watched the next one have a go and get up on third attempt then next 3 cars tried with no luck so route was changed ( we had the car with high suspension and meaty tread on those Tyre's :)
the hill we went up then watched as no others made it 
today they had horse rides and the girls had a ball they also did tie dying, rabbit ears Leather and wood work, the girls went on both Cart and Gypsy Wagon, that night before Dinner they climbed Milk Crated Alex made it to 6 and Robyn made it to 8 well done girls,  after dinner it was the highlight of Camp the kids get to go Yowie Hunting  the girls both got partners so I got to relax and watch from the bottom of the hil and listen to all the screams and fun ( it was dark so all we could see was blue and yellow glow sticks )
Robyn got to pat one and Alex had one run past and almost knock her over, one poor Yowie was a war victim to a slight head injury, but was OK once they actually got his Kit off (yes the yowies where defence personnel in full snippet camouflager kit :)  )


sunday was home day so we started packing up early then went for Breaky more pony rides and wagon rides :) crafts and a Family photo infront of the banner for 2012.
Camp Banner


we left just before lunch as Robyn was tired ( she slept all the way home and then 2 hours at home)

wow what a great weekend away and thanks CCS and all the volunteers that made this weekend away possible 

Tuesday, March 6, 2012

6th March Ultrasound and Xray

Traffic at a Crawl 
we had an ECCO today like an ultrasound done on the heart to make sure she is fine and the Chemo has not done damage to the heart this was at 8.30am so a big day again :/  we had traffic issues on the way in and I had to call at 8am to let them know we were still held up in traffic and would be late, we arrived at CCS at 845 and I rang their office hoping someone may be there so I could get a lift to the RCH and get there sooner and was lucky I had just missed Margie she had just dropped another family at the hospital and they had also just said that I had just pulled in as they left but we got a lift and rushed up to weigh in and then wait for Alex to be called out, we get called in just after 9am and all looks good so we then head straight down to radiology for a 9.30am Ultrasound and then Chest X-Ray these show any change in her chest and abdomen and will let the Dr's know if the Cancer is reoccurring but we have been so blessed that she has stayed clear everywhere and Stable on the mass that was in-operable♥ they still have issues finding the mass near her aorta but it all looks good so that is all I needed and back out to the waiting room for the X-Ray when in Walks Alex's Favorite Nurse Jerry from when she was sick he is looking good and I grab a photo :) he was surprised at how well Alex is doing and even more so when I told him Miss (Trouble) Robyn is now a prep in school and 5 :o
Alex had her snacks while we waited then some lessons at RCH school in outies and then in to see Dr Tim, All looking good and he is happy with Alex :) said her kidney pain could be growing pains but everything is the same and looks good :)
we head out and make next appointment in June  ( back to Wednesdays ) for a CT scan so contrast and IV  then head out to call and get a lift back to the car at CCS.

I called CCS the other night as we would be there before anyone was available to get a park. as this is not our normal day we go Wednesdays Normally but today is Tuesday due to ECCO, and all is ok just parked and caught up after for coffee and chat

Ultrasound 

with Jerry ♥

having a snack break and sitting on the croc

construction in park over road

This would have been a day I needed Robyn picked up from home and possibly school also, but she has not been well all week with a fever so no school today, she stayed home with daddy, on a good note Robyn is looking like herself now and fever has broken  so both back to school tomorrow :)

last week Robyn had her dentist appointment and the broken tooth is an issue it could be broken and I am waiting on a call back as to what they will do next? it is possible that they will pull that tooth as it is loose and hopefully has not effected the gum and bone underneath, the private dentist didnt even XRay that tooth so hope all is ok ( I worry about Robyn too she is my Baby )
Robyn getting her first X-Ray (dental though)

Robyn sitting in the dental chair
I have also got paperwork for the girls to go on Junior Camp this year and they are looking forward to it in April off to the circus then camp and lots of fun will get full details later and where drop off and pick up will be at a closer date, now Mummy and Daddy will have a weekend of quiet to maybe catch a movie and Dinner plus just some relaxation time ♥

Saturday, December 3, 2011

Christmas Party with CCS

CCS Christmas Party was today 3rd December 2011, we missed last year due to being exposed to Chicken pox twice and missed the Camp Quality Christmas party too :( last year
we went on a boat ride ( police boat) and while heading back they got a call to a job so had to drop us off get the bad guys and come back for more families rides :) they joined in on the BBQ lunch too,
Girls got their faces painted and well Alex had them on her arm, both girls got tattoos too :)

they had Jumping Castle scooby doo first then pooh bear girls enjoyed both, after lunch we watched the Knights battle then Robyn at the end got to fight a Knight :) she loved it lol

then Santa arrived on the Fire engine and all the kids got excited  present time had arrived then Santa went back to his sleigh in the Ute while the firies let the kids play with the hose and got a goody bag,

some more playing before we headed home but a wonderful day out :)




























we have had a wonderful day out :)


this year has been hard on our appliances but we as a family have had a good year with no hospital trips out of appointment times and no emergency dept (DEM) visits. now I hope this doesn't jinx us as I am good at that but I am thankful for the easy flowing year we have had,