last 7 days til end of Chemo

well we Had the big Chemo today and Alex has come back neutropenic but the Dr has said go ahead as next week is just one and will not matter what her bloods are and this one will drop them more over the next 7-10 days :( she slept through half of it hehe 4 hr Dose plus the other 2 1/2 hrs on top with the robot.. (IV drip lol)

we have 7 days til the last dose then we go into maintenance mode (what's this no idea they have not really said much only no chemo as of next week plus Ultrasounds and X Rays every few weeks and a CT scan when needed as well the CT is on the cards for the next few weeks too)

she is still having headaches but the Dr is happy to leave them at the moment and to give her PainStop every 6 hrs as needed ( panadeine for kids) I was giving it every 8 hrs when needed as didn't want to give her to much and normal panadol does nothing...we also had to get a plug for her tube so looks like a new tube is going to happen soon!!!!! not looking forward to that day :(  we have found a few families here today that are going into maintenance mode too so has made me feel better about us getting to the end of this phase..
all I know so far is that we will be doing scans etc and every 6 weeks they will access her port to make sure its still working ok til it is removed one day in the future

 we put the Christmas tree up on the weekend as its been a family tradition to do it on the weekend Adelaide does the Christmas Pageant so we still do it even living interstate ( QLD this year)

The girls had a ball I I even video taped it hehe...

ok now its time for us to play Wii Carnival Golf with Alex hehe she is a happy little girl even after all that's happened today so we make the most of every minute now as this has shown me that enjoy the here and now as things can change in seconds so memories are everything♥♥♥

Toilet training

well the last 3 days I have had a almost 3 yr old refuse nappies I am happy with this as she has decided to toilet train not me push her. with all we are dealing with we do not need the added stress now.. Miss Robyn is now on day 3 so far (touch wood) no accidents yesterday was a disaster plus but we had a lady Hubbies work recommended to help with cleaning here and Miss Robyn thinks she is Grandma ( well every female young and old gets called this lol) so she was following her and not interested with the toilet :-/  

Last Night Miss Alex had some unsettled times and by 3am I gave in and gave her painstop to help her settle she keeps saying during the day she has headaches but am not sure its anything only a way to get her own way but in saying that am scared S@#$less to think what else it could be especially this late in treatment we have under 2 weeks to go Monday is the BIG one and we will be at the hospital ALL day for it then the next week is just the small 25 min dose.

got Hubbies Computer back today too so far have had it looked at 3 times & it seams to be working well now ( new graphics care and power supply and $300 gone on it) but he has his domain back hehe.

we will be putting up the Christmas tree this weekend as being a south Australian we always did it the weekend of the adelaide Christmas pageant and will have to email ACCU to get the DVD as my dad :'[ is not here to send the girl one :(

some photos I took for our Christmas cards this year as don't have time think these will do had a play with photoshop E as Photoshop CS3 will not load or reload :(

~Pre Prep Enrollment~

OMG its started SCHOOL My Baby ( Big Girl in her eyes as Miss Robyn is the baby) is starting school I here I look back at My little lady and think where did these last 5 years go :o


<--♥This is Miss Alex the day after she was born July 2004 with her Proud Daddy♥

well today we have taken the step to enrol Miss Alex in Prep for next year yes she is 5 but here in QLD they have to be 5 before the end of June to start that year and Miss Alex turned 5 in July.. we had a open day to check out her teachers and classroom which went well. We have an orientation day in 2 weeks time too this will be a morning with the class etc again for her so Hope she is well that day to do it as its the day After the last Dose of Chemo. plus we will know what the next path for us is... so all paid for the enrolment side start fee's in Jan weekly as its a private school... I am not stressing about spending the extra to send her to this school so far they have 12 preppies enrolled to start :)

we have 2 weeks left to the Last Dose of chemo  I am just sitting Back praying it all goes well as we have had some families at the hospital get news that Chemo is not working and its so sad when we should also be happy.. also last week I met a new family that had just been given the Dreaded news that we all never want to hear that your child has Cancer this is so hard My Dr told me not to worry that they are doing the best they can for everyone and that we all have had hard times with everything our children go through :'( ... Alex has been suffering alot of headaches to so will be bringing this up with the Dr next week again as its scary thinking about any small issue could be bad news.

♥My thoughts and prays go out to all those Mums and Dad's, Son's and Daughter's going down this road with what ever way it goes, I hope you all get some good news ♥ and we all see a cure for this hated disease that takes so many young and Old.♥

November Already

Wow can not believe its November already, we have 3 weeks til Miss Alex's last dose of Chemo and so far all is great. Alex got a visit from Make-a-Wish and she has put in her wish to Make-A-Wish and we are just waiting to see where it goes She so wanted to feed dolphins but they said she was to young and that it is done down in Coffs harbour, I looked up on sea-world as we have tickets to go soon for us all and she may just get in for a swim with me and the Dolphins it will be something we both will cherish ♥ so I can save the money if not she can go alone and we will have the photos and her happiness... this I would do just for her, and our memories ♥♥ Alex asked for a beach holiday and Dolphin feeding!  sea-world do swim, she had a back up wish we had to talk her into like a castle cubby house but we just needed it built so we could dis assemble when we move in 2-4 years time joys of the life we lead.

Halloween has gone by and I took Miss Alex out trick or treating ( yes I know its not really an Aussie thing but so televised) she had a great walk around our local area and even though tired thought it great :)

this week was our third to last chemo week next week is a week off but we also had more ultra sounds and Xray's to keep an eye on those lymph nodes on the Aorta but they seem to be shrinking :D so thats a good thing plus her only remaining Kidney has grown also a good thing (mummy does a happy dance)

Both girls ended up with Croup but it has passed with no major issues in this house. No new news though just waiting on Scan results ( gotta say I hate the waiting but hope the no news is a good thing) Miss Alex keeps asking when her hair will grow back and all I can say is soon think its a Christmas wish hehe she wants to have hair...