physio appointment and feet casting

Today we headed in to the RCH, yet another trip into Brisbane and this kills us due to fuel etc but we get by ( no funding to help us here as we are just under the 50km hospital to hospital we are a little further but that is how they assess it, we ended up closing the Xmas account as needed money for the 2 trips will re-open after Xmas now :(  ) I had to find the place as it is in the surf Building like DEM is but as its day time could walk through the hospital not around hehe, was not hard to find and we waited for Ann-Marie  to see us, she had got the ortho as well from The RBWH (Royal Brisbane Women's RCH, RBWH & RBH are all next to each other and sort of joined ) they where happy that Alex was not as bad as some kids get after Chemo etc but she definitely has slap-foot just 1 of the 2 signs, so a cast was taken as she is smaller than the inserts they have in stock so they make them to fit the smaller ones, if all goes well will be able to pick up the inserts tomorrow if not in a week or 2, Alex got scared as they made the casts wrapping her feet in plaster hehe she was good though, we will be reviewed again at a later date to make sure she is getting better, while up there I grabbed the 4 Camp Quality Jumpers we got and OMG are they huge 2 at size 3XL and Alex size 8 Robyn Size 4 well the only one that fits is the 4 and it fits Alex ROFL, the 3XL is down to my knee's and very Cossie hehe so will see what I do may gift them ???
Alex was a little upset as her Prep class have a school excursion today too she missed but its not something they have been learning so that is good she is inviting all her friends for her birthday I think it is sweet she has friends this year and can have a party we are just doing a small thing something princess fairies and pirates for the boys I guess lol will have to sit down and see what I can drag together hehe have a few weeks to go


Tomorrow we will be back in at the RCH for the Flu shot as Alex is getting the seasonal shot and Robyn the H1N1 she is under 5 so can not get the seasonal one plus I have to pay for her to have it but Alex is High risk so gets it anyway. both girls hate needles but this is one of many ahead for Alex now she is cleared to start her Immunization  updates thanks Chemo for wiping them and not looking forward to having her get them all again I so feel like a bad Mother for doing this to her :( but it will be good for us due to I will have peace of mind in knowing she is safe from some childhood illness's that they prevent, and with her at school hopefully not miss to much this year other than the appointment days etc :)


Edit to add:-  just called the hospital about immunizations etc as Alex is 5 almost 6 and she was to have the seasonal flu shot but now is just having the standard H1N1 shot as she is young plus higher risk so not getting seasonal shot now am glad I called and asked about that ( it does pay to be a pushy mother when your child's health is at stake I feel bad sometimes but seams I am doing well to follow my instincts even from the first signs I picked it up )  "if I had known this last week I could have got them done locally as this one is free to all but as I am booked in and have a immunization schedule to pick up will just bite the bullet and drive back to Brisbane"


Hug your Children close and pray for those fighting this battle ♥

test run and More (photos ♥)

OK this was originally posted from my Phone so if I EVER need too (and I hope I do not need to) I can post from anywhere

but thought I would just add some Photos from yesterday's Park day the Girls enjoyed the day out in the fresh air its cool but still sunny this winter :)

good to get out and have fun with out the added stress of treatment etc that usually follows but am hoping that scans stay No Change and we get told Remission in the future

updated with a slide from Photobucket 

small update

Monday the 31st May-  I got the call to say we have the  appointment with the Physio/ortho about Alex's feet and walking issues on the 9th June,  will see what they do then about some of her walking and feet issues so looks like more travel to RCH but hey they do a wonderful Job with everyone up there and I do prefer to go there than the local hospital as they are not really good with Children with cancer etc.
also  Monday  31st May- I got a new windscreen in my car as it had a chip and was slowly spreading this was free with our insurance so that was good. had to wait around all day though and then a quick trip to school for Alex. the tape was left on for a few hours but now have a nice ned window to see through service next and so glad we have still got good tires something I am happy not to buy til required.  the car needs to be road worthy for us at all times  Bike to as I need the car to do school runs etc!!! good thing The Bike is cheap to run  just not for services or repairs lol

Alex had her school Photos taken today too so am looking forward to seeing them ( even though they are through Pixi!!!) its her first school photo so will be good to send family etc :)  plus our first pro photo of her since before cancer hit.

have been a little but off lately asking Why and what next but think we just need to keep focus on wher to from here One Day at a Time and stay Positive about how well are all are doing and how we kjust want to see the NO CHANGE on future scans 6 months out now so still early days but saying that we must keep moving forward.  I am looking into all I can do to get the word out about Childhood Cancers as I see so much about adult but their are TOO MANY kids gettin sick or lossing this battle and as it is close to home am thinking of doing something that I can donate the money back to childhood cancer research still in my head but will always do what I can even small things add up and one day hope to see less to No Children suffering

Oh and did a shuffle on my music Alex loves the Shrek song Hallelujah (Leonard Cohen song) so its the First one Just for her :) ♥

The Chosen Mothers and Walking On The Edge Of Life

Hi 
     Found this poem at a wilms' Mothers website
     Just wanted to share

The Chosen Mothers

by Erma Bombeck

Most women become a mother by

accident, some by choice

and a few by habit. Did you ever

wonder how mother's of

children with life threatening

illnesses are chosen?

Somehow, I visualize God hovering

over earth

selecting His instruments for

progagation with great care and

deliberation. As He observes, He

instructs His angels

to make notes in a giant ledger.......

"Armstrong, Beth, son, patron saint Matthew"

Forrest, Marjorie, daughter, patron saint Cecilia"

Rutledge, Carrie, twins, partron saint Greard."
Finally, He passes a name to an angel and says, "Give

her a child with cancer." The angel is curious. "Why this

one, God? She's so happy."

"Exactly," smiles God, "Could I give a child with cancer

a mother who does not know laughter? That would be cruel."

"But, does she have patience?" asks the angel,

"I don't want her to have too much patience or she will

drown in a sea of self-pity and despair. Once the shock and

resentment wears off, she will handle it."

"I watched her today," said God. "She has that feeling

of self-independence that is so rare and necessary in a mother.

You see, the child I'm going to give her has it's own world.

She has to make it live in her world and that's not going to be easy."

"But Lord, I don't think she believes in you," said the angel.

"No matter, I can fix that. This one is perfect. She has just

enough selfishness."

The angel gasps, "Selfishness? Is that a virtue?"

God nods. "If she can't separate herself from the child
occasionally, she'll never survive. Yes, here is the woman I will bless

with a child less than perfect. She doesn't realize it yet,

but she is to be envied. She will never take anything her child does for

granted. She will never consider a single step

ordinary. I will permit her to see clearly the things I see....ignorance,

cruelty, prejudice....and allow her to rise above them.""And what about her patron saint" asks the angel, his pen poised in mid-air.God smiles and says..."A mirror will suffice."

this one from a childs point ov view ♥

Walking On The Edge Of Life
© Lorna Mahan


The world keeps moving forward
as time stands still for me,
I am the kid with Cancer,
locked in battle to be free.
For all us kids on chemo
our lives are put on hold,
As we fight to stay alive,
our chances good were told.
Our attitude is courage
we live this life each day,
Just waiting for tomorrow,
praying cancer goes away.
Walking on the edge of life
We’re never looking down,
United here in front of you,
until a cure is found.




Fight For Life
© Lorna Mahan


Fight For Life
Storms of life are strong enough
without cancer stepping in,
Came creeping through the back door
just counting on a win.
Engaging you in battle
we firmly stand our ground,
Armed with courage, faith and hope,
our child's life we surround..
This fight rages day and night
the will to surivive is strong,
We will never surrender
In our lives you don't belong.
Prepare yourself to lose this time
our child's life you won't take,
This is a fight you will not win
Cancer, make no mistake!