Scan day with good results in the end

OK today was going to be a long day but OMG was it ever so long with appointments added at the last minute.

5am I was awake and stressed about the day ahead.

6am up and showered getting girls ready the breaky and all the things I needed in the car. grabbed the stroller as Alex gets tired still easily and OMG a spider fell out lucky I was bouncing it on the driveway before shutting it in the boot. so he went splat Sorry!!!

7.15am out the drive and on to childcare to drop Miss Robyn in for the day at this stage thinking I should be home by 3pm at the latest (yeah Right!!!)

9.05am Arrive at the RCH and Banksia out-patience Late but thanks to Brisbane Peek hour traffic. they do Alex's Obs she still has not gained any weight but not an issue. Elma the port ready for access and tell them the time it went on. they access the port to early ARGH poor Alex was screaming :'( so they do bloods etc then flush so its ready for CT at 1.30pm.

9.50am we get into see Dr Tim Alex loves her Dr and he is a wonderful oncologist, we talked about the abscess and Alex's teeth and he got us referred straight away to upstairs and he put it he wanted her treated by someone he knows. so the appointment was made for 2.50pm that afternoon with me running straight up with the referral.

10.35am physio appointment, we discovered that Alex has one leg longer than the other so this will be monitored over time she needs new orthopedics so we need a referral for that and may be lucky to squeeze it in today as well.

11am we finally make it into the wonder Factory and Alex is happy playing and joining in, they had a high school doing a shakespearean play and Alex watched some but got board so off we go to play foosball and paint hehe

11.50 we are back in Banksia to start her oral contrast, we get the drink then head out to the play area with the 1st of 3 drinks over 1.5 hours we play a little then when the next one is due go back into Banksia, ( we were like yo yos in and out of there today) after the second drink we play games in the ward then have the third and go back out for a quick play then toilet stop before radiology for the CT.

1.30pm we arrive on time and then Alex has a small play before we are called in to head down the foot road to where the CT is. Alex knows this drill well and I get to take a photo of her on the CT then I go sit down and wait for her to be done she is such a "Super Trooper" then we head back to Banksia yes we're back hehe but hoped to see the Dr before the Dentist visit although we knew he was also on call so missed him this time. the staff De needled Alex's port then it bled alot so we hat to wait in the room til it settled down.

2.48pm now its time to go see the Dentist upstairs so up we go to another waiting room. we sat and did a puzzle and then the Otho arrived to do Alex's feet lucky as I had forgot about that and Banksia had told her where we were. then we get called into the dental room Alex goes and sits down like the "super Trooper" she is and they check her teeth she is getting use to this all now with 3 visits so far. the abscess is an issue and needs attention NOW they tried to get us in this week like tomorrow or Friday but no luck, appointment was then made for Friday the 12th she will lose the tooth that has the abscess and we will deal with the future issues she may have as they are required... she will have X Rays and depending if any other teeth have abscess issues she will lose them too. but otherwise they will cap her teeth that have the cavities. she has 2 wobbly teeth and it was funny as the dentist (Steven) said a wobbly tooth the High Five to Alex hehe so cool to see these specialists treat children special and make them comfortable. filled in the papers and finally got out and yeap you guessed it back to Banksia to see the Dr before we can go home.

3.20pm in Banksia out-patience waiting for the Dr to squeeze us in between others and call outs. calling home every 20 minutes as I could not get home in time to pick Up Robyn so we had Hubby leave work early and the Childcare dropped Robyn home :) 
4.10pm we get called into see the Dr but now we have no File hehe so a wait for that to come back and then fill Dr Tim in on what Dr Steven has said get scan results (preliminary results but still) the tumours have SHRUNK woohoo OK back in my bubble as I do not want to jinx anything and we are 2 weeks away from our first year of treatment, next thing we discuss is Port Removal. Dr Tim decided its about time to go and well if anything does happen we can cross that bridge when we need to. so another lot of forms and now 2 surgeries for Alex in the next few weeks or so... woohoo no more stress about her port or infection etc. yeap stepping back into the bubble to remember things are good but life is unpredictable.

well we finally get out of the hospital and head home in Peak hour traffic again and arrive home after 6pm Good thing we sorted out Robyn's drop off :)


we also got our invite to Camp Qualities Christmas Party and we will be going

so good news that things are still shrinking but always standing strong that cancer is stupid and can wait and wait, also finding out a few new things that are issues from her treatment but thankfully all treatable and manageable... small steps forward and we are slowly moving forward too.

smiley face in shrek paint

CT scan

playing in the play ground

Halloween 2010

above are photos from Halloween 2009 and a very proud Alex with her loot lol

Below is 2 girls ready at 11am for trick or treating but sad they have to wait lol Alex was actually ready at 7am lol

Today is Halloween and one of Alex's favourite days  (others being Christmas and Easter and her birthday lol) but she is dressed like a fairy princess, Daddy decided Miss Robyn will be a Knight with the works :) she wanted it too or a princess like Alex ♥♥

Last year Alex was a princess too but she had no hair and I got so many questions about how she was plus we still had 3 weeks of treatment to go and the NGT still in  see photo above for 2009 and 2010 , this year we are 11 months and 1 week Off treatment and she has lovely hair and looks healthy :)

we also decided to do the proper Samhain day pork dinner we are having a pork roast mmmmmmmm....

Chickens are both doing great too they have now got an outside run they can be put in while we are outside for fresh air.

Here are some photos from yesterday before and after the run was made.

At Bunnings getting material for the run girls played in the play area and Daddy got to look at STUFF in peace lol

Alex and Robyn with Rainbow and Lee lee Chickens  inside the trampoline net

Alex with the chickens it the the small run...

Alex with Rainbow Chicken

Chickens on a basketball funny they didn't want to get off either lol

The last 2 days Alex has been tired but it has not stopped her wanting to go trick or treating hehe and who can say no  NOT ME!!! anyway she slept with me yesterday from 3.30pm til around 7.15pm then went to bed at 8.30pm with me she just wanted mummy and I so hope these tired spells are nothing just her being a healthy 6 year old who runs herself into the ground and gets tired scans are on wednesday so that will ease my scanxiety for another few weeks and hopefully we will soon be on the 3 monthly scans soon... so that means port removal woohoo that will be a small step forward for us.

*~Dentist update~*

this morning at 7.50am Alex had her check up at the school dentist it was funny as I called Queensland health to push this and the school handed out the forms yesterday when we already had an appointment lol

Alex has some issues with her teeth and after the scare from the private dentist I was told we would still have a wait, so speaking to the dentist this morning Aaron and Alex has also now got an infected abuses so she is now on the rush list and we should hear from the local hospital as to when they want to do the surgery. it is only day surgery and she will be on watch for 2 days following but they will be fixing the teeth they can and may only pull 2 not 3???

so alex is now at school as it is swimming day today and she loves swimming :) but I have to take her to the Dr this arvo for antibiotics for the abuses so she doesn't get sicker ARGH. then next week we have CT and Dr's appointment so busy busy busy is my middle name lol

I am happy that we have had her checked up again as wow I would still be waiting with the private as I needed the cash up front ARGH. and now with an infection it really needs attention NOW!!!
But I do feel bad as I should have been scrubbing her teeth when she has sore gums from chemo :( and would have saved us all on this :(

ok of to relax if I can as was stressing over a dentist visit like I do everything else :(  Mummy worry wort hehe

our sleeping chickens and yes they are still doing well :)

summer is here with storms

we had a lovely weekend and was very warm and not really summer yet. but then last night we had heavy rain and a lightning show

today Alex went to school she was fine before we left home but once at school she became extremely clingy and would not let me go even to go into class. they also had a relief teacher today so she took Alex's hand and tried to calm her down. I just hope this is not a sign she is coming down with something ARGH!!!

we have Alexandria's CT scan next Wednesday and also see the Dr ( funnily enough see him before the CT so Will not get results that day but think they will be fine Positive thoughts) she will also get reviewed by the physio as her walking and running, and we may need more exercises to follow.

Robyn is fine crazy as most 3 yr old are and OMG a screamer  what did we do wrong as one is an angel and the other the devil in a dress??? we have done nothing different

on one good note I have submitted my first uni assignment and just hope I pass :)

we have still got 2 happy chickens but they have now worked out they can fly a little bit  enough to get out of their tub and we have another 3 weeks give or take before they will be ok to go outside??? they still have a light over them at night for warmth.