Australia's Biggest Morning Tea

On Thursday Alex and her Class went to the planetarium in Brisbane she had a ball

Well Friday the 28th  I went to school with the Girls as Alex had a Big day ( we all did really)

Alex had the Book week parade and Robyn went dressed as Piglet ( this was one costume Alex won at 3 yrs of age and well very good quality) Alex went as Dora of all things. 1st up was Prime Time which I had to leave early again Due to Robyn screaming :(. then a book week parade and followed by the "Cancer council" Biggest morning Tea. this is something close to my heart to see that funding gets back into Cancer research as I so wish to see no one suffer like us Alex is doing well and I pray she never has to see it again either,

the school Morning Tea did well and raised $200. for the small group that attended :)

I am now looking into a good healthy Diet For Alex and Robyn as this will help us all, cutting out preservatives (I did this when Robyn was first born and it helped Alex til she was diagnosed but it didnt stop the cancer but it may help them grow up healthy is my thinking will do some research into the best road for My family health wise!!!!!

I must remember to try feel for others for what they are going through but to release too as I have seen so many relapse in the last month I am stressing we will be next but on a good note Alex is going well and I must stay Positive as she is doing well and is all that I should hold to my Heart ( And Robyn off cause)

Next Scan in Late July so My Big girls will be 6 for that one and we should have had all her Immunizations done by then too

just some Random Photo's added here up top Alex at School, then the Biggest morning tea out front of the Library at school, Robyn (Piglet) and Alex Dora before school book week, Robyn at School waiting for the bell and Alex, and Alex Rock Climbing for WOSE at School.

Dr and scan Day

over the last few days I have been a emotional mess like always before this visit and scans as I just do not know what will happen but also just praying for the best outcome, what ever we do get we will deal with it as well we have to but its always a wait to hear as we see the Dr soon after the scans so we never find out  which is good the No News is Good news so here's hoping that I don't get a call this week...

Alex has also been fighting a cold still she sort of bumped it before we had Make-a-wish but not its back just sniffles and a sore throat so I kept her home on Tuesday feeling bad about it but she was not her normal sparky self at 7.30am she was lethargic which sets of warnings to me but she is not to bad so was on alert to make sure she stayed stable no temps etc.  I gave her the demazin I know she can have to help and told the Dr about it at the appointment,

Today we had the Dr visit plus Ultrasound and X Ray for Alex this was running late due to some tech problems so had a little wait with fasting but all was ok they where happy that it all looks good :) X Ray was clear too :) plus she had to have her port accessed as normal but due to the last attempt with not being able to draw blood out this was no issue today but as they flushed it the needle moved and fluid went into the skin which was very painful and made the port swell,. Alex loves seeing her Dr (Dr Tim Hassall)  he is a wonderful Dr/ oncologist and really treats the children great, so glad we used our private health insurance to stay with one Dr. I had a few extra questions also for the Dr like immunizations and her feet she is really pigeon toed now and slaps her feet down ( the slap feet is a side effect from chemo though) so he got the physio to check her out and we will be getting an Ortho appointment in the next few weeks and then Hydro if she doesn't start to improve, but think this will help her heaps

This week we have also hit the 6 month mark since Chemo Finished a small milestone but a milestone, so we should know soon what Immunizations are required etc and so forth, Dr Tim is sending our Dr the schedule for this so we will be crossing that bridge soon.

another anniversary for me this week is that My Mum will have been gone 20 yrs so this also added to my emotional state of mind as its 11 months since dad passed last year too.  I just wish I had them both here for the Call I know my mum would have been here to help if she could she never met her grand children ( my girls are the only ones so far) and Dad only met Alex before she was 2 and he did love them both♥

Pete also cut his hand today between the pinky and the ring finger so not a good spot but he is seeing the Dr about that tomorrow so hope its all OK,

we have also now gone to 8 weekly appointments from 6 weekly so that is a small jump but something positive for us :) I feel so happy about this as it means things are staying stabble and that we can relax a little but we must still remember that cancer is a pig of a disease that it Hides and can come back at any time, there is no cure but we just hope that Alex never see's it start again in her lifetime and that she can live a happy healthy Full Life

Cancer Mum's ♥Poem♥

♥ this is a poem of sorts that I borrowed from another Cancer mum's site she also borrowed it so no idea where it is from? but it tells what we are and what we do but also in saying that it is similar to what any Mother with a seriously sick Child would know as well we do this for love of our Child whatever they have or are dealing with its Love  ♥

Cancer Moms (borrowed from a fellow cancer moms site)

I belong to a special group of women

My friends and I have an amazing bond.

We never wanted to be in this group,

yet we are in, for life.

Maybe we have met, maybe we haven’t,

Yet our love for each other is boundless.

We know the pain the other one feels,

And we share our victories small or huge.

Words like chemo, IV, Zofran , bald heads

Are always parts of our conversations,

As well as roadrage, tears, and meltdowns…

We always know where the closest puke bucket is ,

We can hold it in one hand and if necessary,

Swallow the sandwich the other hand was holding.

We can drive to the hospital,

Park in the dark parking garage

Make our way thru the halls of the hospital

And to the appropriate floor,

Settle in a room, turn the TV on,

Give instructions to the head nurse,

Silence loud beeping IV pumps,

Direct a wagon AND an IV pole

To the playroom without hitting anything

Make our way back to the correct room

And all this, mind you,

With our eyes closed at any given time.

We know how to draw blood from lines

sticking out of little kids chests.

We can hold them down with one hand,

While a nasogastric tube is inserted in their little nose,

And be on the phone with their dads at the same time.

We can live for days on hospital food,

And on maybe only one meal a day.

We know the names of up to 20 different drugs,

their purpose, dosage and time to be taken.

We are always on call, 24 hours a day,

Seven days a week.

We are used to not always looking our best,

Hard to do with only a few hours of sleep.

Make up, hair styling, skirts are words of the past .

We have become addicted to texting,

hospital, clinic, home, wherever…

We talk sometimes at all hours of the night;

we know we can count on someone to be up.

Then for one of us , the world stops .

She has to walk away, broken.

This job is over.

The job is over, but the fight is on.

Remember, I said we were in this forever.

We are friends, sisters, temporary nurses,

We are each other’s rock, each others punching bag,

We listen, we vent, we cry, we laugh together.

We share our lives and our deaths

we share our pain and our victories.

We are strong, but not by choice,

sometimes we win, sometimes we lose,

but never are we defeated.

We are not nurses

we are not doctors,

we are cancer moms…

♥Make-A-Wish Cont....♥ Final days 7 and 8

Day 7 Friday the 14th May 2010. Well today is our last full day on the Coast and we have the silly Timeshare presentation to do in the morning (thanks to me and my blocked ear and not fully hearing what was happening) it was good and would be worth it I think but not for us. We then went and the girls got to Build a bear so they did it all Alex's is special as it is her wish week so it speaks and they named them then we went back to the room to change and then it was Beach time we spent some time down on the actual beach today too,

Girls built sand castles with daddy and Mummy and paddles with mummy, we then walked back down the surfers paradise to get Maccas for the girls then back to the room to change and pool fun. Alex made a new friend, most of the week everyone snubbed her but today a Kiwi Girl named Holly said Hi and they hit it off so was good they even played with Robyn but as it was in the pool my girls cannot swim properly yet due to Alex not being allowed in a pool all last yr but now will think about getting lessons again soon for them, took some convincing to get them out of the pool but we did so a shower to warm us all up then dinner and hoping they are out early so we can start the thing of packing up this apartment for heading home and then had Pizza for dinner.

I am so sad to see this week come to an end but will have so many photos to look back on.

It has been one very long week but we have had fun even with moodiness and tantrums lol, the girls do not want to go home but well we have to Monday is school for Both alex and Robyn and Tuesday Pete is back to work,

Day 8 Saturday the 15th May 2010. Well this was our last day at the room and well it’s been a busy week full of fun and memories, I am tired but so looking forward to getting home and sorting out washing etc uploading Photos etc

*All up we have seen Miss Alex have a wonderful week away and doing exactly what she wanted 1. Feeding the dolphins and 2 a beach holiday, she has been the boss all week about what we are doing with-in reason and she has been spoilt it was one great time for us all and **Thank you Make a wish for this great time together and memories we have made**

** Added note from Alex as we had such a lovely view she told us at the start of the week that every night the large buildings grew so they got bigger hehe we just agreed with her.

on a bad note we arrived home to the safety switch being tripped and 2 fridges and a freezer full of food Gone to waste so more cleaning that we tried to not come home to and now shopping to be done,