Wednesday, September 7, 2011

September scan day

7th September is Alex's scan day and we get to have Ultrasound and X-Ray instead of another CT so less radiation for My Princess and no needles again ♥ 11am for these scans so she must fast for 6 hours before the scan :( not an easy thing to do when she loves to eat but they need the tummy empty to see all that needs to be seen ( tumor near aorta is hidden by the tummy most times. ) I called CCS about parking there and dropping all the toys the girls have either grown out of or no longer need for the families.

scans came back same or close to same so no real change :) but like some days they forgot the tumors near the aorta so we got called back in this is hard to find due to bowel and stomach being in the way so she gets grizzly after this plus being hungry  (VERY HUNGRY). we then waited in the waiting room  not very long for the chest X-Ray to be done before heading up to Banksia to see Dr Tim.  Alex loves her oncologist and she gets excited when he calls her in :)
The Dr was happy with all Alex has and is doing, we just need to watch the pain in her leg and neck but could be growing pains.(Alex has had pain in her bones and tummy the last few weeks so a little worried about this but staying positive plus having a friend up helped keep scanxiety at bay) Alex is now 25.3kg and 119cm tall even the nurses that have not seen her in some time told her to stop growing lol. we got more bravery beads to continue the chain for her and still waiting on the blood transfusion one (2) and some more for injections etc but should get them in Dec when we go back for the next scan.

Dec is booked in for a CT as she has not had one in a little and these like MRI's show more info for the Dr's Alex is also due a ECCO at the end of the year  to check her heart, ( one of the chemo's can have delayed issues after treatment and we do not what that) we will book that at the next appointment and will be done in the new year.


watching the magic school bus
 playing in the RCH playground
 CCS playground

Sitting in front seat for a little drive ( now she is 7 she can but still a little unsure about it myself she is still small she didn't stay long as seat-belt is a little high still so back into the back seat)


Tomorrow is my scans and Dr's appointment to see blood results plus car in for service, then I wait til Oct for gyno appointment to see what I can do more to improve my iron levels or why I am anaemic,

1 comment:

Anonymous said...

Glad to hear stable result.

Will be thinking of you for your Dr's appt tomorrow x