Day 2

On ward the nurses got an extra meal for me, Alex picked at hers though :( nothing new but will be happy to see her eat normally, they also found a charger for my phone so can post and keep hubby updated. Alex was given antibiotics over night with fluids + potassium, she slept well with no pain so hope that is a good sign that the infection is being fought off. They came in every hour to do obbs and reset IV before it beeped.

The ward was quietish we could not get onto the oncology ward so are in surf this is pre and post opp plus burns ICU etc. So can by busy

She was woken at 5.15am to have bloods and breaky before the fast for ultrasound at 11.45am. We then tried to get a little more sleep. With Alex sleeping til 7.30am and through the jack hammer next door, daddy called to fill me in on home and miss Robyn has been using the toilet with no fight and she slept in her own bed all night, so proud of her,

Alex's tummy was sore lower this morning when she went to the toilet I told nurses, she went again and now has diarrhea poor kid what next, it seams that someone wanted us here for this scan etc but just hopeing its clear,

Paranoid mum

Well look at me posting on my phone
Today was to be a normal trip port flush and out. We arrived and all was good. Then we tell staff about her tummy and they get the resident to check her over. Weight etc done no issues. Dr makes appointment for friday ultrasound and to see attending. our dr is away on holidays with his family. They access port no issues flush but still trouble drawing bloods. Not a big deal as we dont get bloods. They de access and the dr walks in wanting bloods argh so re access and try again. No luck so we go down stairs for finger prick and to wait out getting a urine sample. The hospital has an open day so we check it out. All good alex was in the back when they filmed a bit for kerryann show hehe. Still all good she pats animals and we wash hands. She gets face painted still all good. Off to toilet to get that sample so we can go home she starts saying her face hurts so i took off the face paint. She said her head hurts still we got sample took it in and she coughed that was it she threw up all over herself 3 times some one gave me a towel [the only day we have no spew bag] ring onc to see what they sugest and back to banksia outpatience we go. Get isolated incase it is a tummy bug. Wait around to see 3 dr's her bloods are iffy white cells elevated etc and keytones in her urine. At first we get told can go home and keep fluids then they say no due to looking at her chart. They bought forward ultrasound to tomorrow now. She is on iv anti biotics over night with fluids to keep her hydrated. Port access went well second time with blood draw too. Now waiting on a bed and see what is ahead of us tomorrow.

Port Flush RCH Trip

well tomorrow is the 6 weekly port flush we have to have so off to the RCH at 7.30am and in and out in minutes (I can Hope lol) I am going to mention Alex's Tummy to the staff at Banksia Onc/hem unit as she was in so much discomfort last night and now her appitite is dropping she is hungry but only eats half her normal amount I did get a tub of Yoghurt in though hehe, she is still bright mostly but I just worry as per last post about her for any reason especially when it is so similar to what we had 16 months ago when she was first Diagnosed, have been told by many its growing pains and scar tissue healing etc especially with the Cold weather (0 -1 over night occassionally Brrr)

Today she has been great helping me to clean up all their toys etc ( even though she is tired she still did so much and is now watching Nick Jr hehe) we have planned a Birthday Party next weekend as she missed it last year as we all did and well we are on the unknown Road now so want to celebrate her Life 6 yrs old on the 15th July and will be almost 8 months post treatment ☺

we will do a BBQ Dinner after or something as it is also My Birthday that week (14th) she was the Best Birthday Present I could Ask for ♥

☆ Worries ☆

yes I am worried Alex has been getting Tummy aches alot lately similar to when we first found out about the lump but we have a scan on the 28th so am waiting for that as have been told its scar tissue repairing etc so hope this is true, she was upset last night so much that she slept with us and ended up kicking Daddy out of the bed lol, Robyn joined us at 3am like she always does hehe  ( I am always worried and anything like this sets of the Big alarm bells )and I think I have started to get scanxiety already and we have almost 4 weeks to the scan, getting port accessed next wednesday so may just ask the nurses at Banksia to see what I should do!!!


on a different note Robyn has bought a tummy Bug home from pre-school (child care)( this too could be making Alex have a sore tummy) and as Robyn will not wear nappies during the day now we are having No.2 accidents but no No. 1 so it is a step forward.