~1st week Radiation~

well on the 9th we went in and stayed in Brissy at Leanard lodge, was booked in for 3 nights til Friday arvo.

Tuesday the 9th was Chemo in the morning and had a talk with the dietition and Dr about the amount Miss Alex was eating, (not enough) so was given some polyjoule to try get her more carbs and was told to come back in 2 days to see Dr again and take the next step, she had lost 500g since last week 8 days, we then had chemo and then off to the last play session at radiation. Miss Robyn decided today was a good day to play up too :S

wednesday the 10th was the 1st day of Radiation was nervous and not even me having it Miss Alex did wonderfully and layed so still for them she was a gem♥ the people thought it was great that a 4yr old (almost 5) could be so calm etc♥ she got some stickers after and we went to the wonder factory to play and paint after this gave me a break from trying to entertain them both hehe

Thursday the 11th had a Dr's appointment at 9am then Radiation at 10.30am they weighed Miss Alex and another 100g down :( so was told we would be getting a NGT ( Tube feeding through the nose) and that she would be admitted to a ward for the night to settle in with it all plus I would need training to use the equipment, so had to come back after Radiation to do this, She also had slight sniffles so she wore a mask til they cleared her as being not sick and looks like its hayfever like mummy lol, I was worried about the admittance as I had Miss Robyn with me and no one could stay on ward with Miss Alex, but they fixed it so we both got to stay :) was so happy about that ♥ Miss Alex worked herself up after we got back as she didnt want the tube but once it was done was fine then it was a waiting game we had chips for lunch and waited to be admitted as all beds where full, we ended up on a different ward and was not oncology so they had no idea how to deal with her as she had chemo in the last few days etc, but someone came and filled them in on what needs to be done ( not much as I was with her and we had our own bathroom lol) they started feeds soon after a slow one over night then bolar feed during the day which I watched as wanted to learn as much as possible, on friday they showed me how to use the machine I was given and we where finally ready to come home, great Friday traffic in Brisbane after 3pm :o not good took us 2 hrs with 2 accidents on the roads plus I witnessed one on Ipswich motor way heading in just after redbank plaza :o was so glad to finally get home, I had no issues with the feeds and Miss Alex was great telling daddy how it all works. Miss Robyn wants one now but not going there lol she wants to be like her big sister ♥

so here I am doing washing etc ready to start again on monday week 2 ( 3 days down and 17 to go)