Scan day with good results in the end

OK today was going to be a long day but OMG was it ever so long with appointments added at the last minute.

5am I was awake and stressed about the day ahead.

6am up and showered getting girls ready the breaky and all the things I needed in the car. grabbed the stroller as Alex gets tired still easily and OMG a spider fell out lucky I was bouncing it on the driveway before shutting it in the boot. so he went splat Sorry!!!

7.15am out the drive and on to childcare to drop Miss Robyn in for the day at this stage thinking I should be home by 3pm at the latest (yeah Right!!!)

9.05am Arrive at the RCH and Banksia out-patience Late but thanks to Brisbane Peek hour traffic. they do Alex's Obs she still has not gained any weight but not an issue. Elma the port ready for access and tell them the time it went on. they access the port to early ARGH poor Alex was screaming :'( so they do bloods etc then flush so its ready for CT at 1.30pm.

9.50am we get into see Dr Tim Alex loves her Dr and he is a wonderful oncologist, we talked about the abscess and Alex's teeth and he got us referred straight away to upstairs and he put it he wanted her treated by someone he knows. so the appointment was made for 2.50pm that afternoon with me running straight up with the referral.

10.35am physio appointment, we discovered that Alex has one leg longer than the other so this will be monitored over time she needs new orthopedics so we need a referral for that and may be lucky to squeeze it in today as well.

11am we finally make it into the wonder Factory and Alex is happy playing and joining in, they had a high school doing a shakespearean play and Alex watched some but got board so off we go to play foosball and paint hehe

11.50 we are back in Banksia to start her oral contrast, we get the drink then head out to the play area with the 1st of 3 drinks over 1.5 hours we play a little then when the next one is due go back into Banksia, ( we were like yo yos in and out of there today) after the second drink we play games in the ward then have the third and go back out for a quick play then toilet stop before radiology for the CT.

1.30pm we arrive on time and then Alex has a small play before we are called in to head down the foot road to where the CT is. Alex knows this drill well and I get to take a photo of her on the CT then I go sit down and wait for her to be done she is such a "Super Trooper" then we head back to Banksia yes we're back hehe but hoped to see the Dr before the Dentist visit although we knew he was also on call so missed him this time. the staff De needled Alex's port then it bled alot so we hat to wait in the room til it settled down.

2.48pm now its time to go see the Dentist upstairs so up we go to another waiting room. we sat and did a puzzle and then the Otho arrived to do Alex's feet lucky as I had forgot about that and Banksia had told her where we were. then we get called into the dental room Alex goes and sits down like the "super Trooper" she is and they check her teeth she is getting use to this all now with 3 visits so far. the abscess is an issue and needs attention NOW they tried to get us in this week like tomorrow or Friday but no luck, appointment was then made for Friday the 12th she will lose the tooth that has the abscess and we will deal with the future issues she may have as they are required... she will have X Rays and depending if any other teeth have abscess issues she will lose them too. but otherwise they will cap her teeth that have the cavities. she has 2 wobbly teeth and it was funny as the dentist (Steven) said a wobbly tooth the High Five to Alex hehe so cool to see these specialists treat children special and make them comfortable. filled in the papers and finally got out and yeap you guessed it back to Banksia to see the Dr before we can go home.

3.20pm in Banksia out-patience waiting for the Dr to squeeze us in between others and call outs. calling home every 20 minutes as I could not get home in time to pick Up Robyn so we had Hubby leave work early and the Childcare dropped Robyn home :) 
4.10pm we get called into see the Dr but now we have no File hehe so a wait for that to come back and then fill Dr Tim in on what Dr Steven has said get scan results (preliminary results but still) the tumours have SHRUNK woohoo OK back in my bubble as I do not want to jinx anything and we are 2 weeks away from our first year of treatment, next thing we discuss is Port Removal. Dr Tim decided its about time to go and well if anything does happen we can cross that bridge when we need to. so another lot of forms and now 2 surgeries for Alex in the next few weeks or so... woohoo no more stress about her port or infection etc. yeap stepping back into the bubble to remember things are good but life is unpredictable.

well we finally get out of the hospital and head home in Peak hour traffic again and arrive home after 6pm Good thing we sorted out Robyn's drop off :)


we also got our invite to Camp Qualities Christmas Party and we will be going

so good news that things are still shrinking but always standing strong that cancer is stupid and can wait and wait, also finding out a few new things that are issues from her treatment but thankfully all treatable and manageable... small steps forward and we are slowly moving forward too.

smiley face in shrek paint

CT scan

playing in the play ground