Thursday, March 10, 2011

Next CT scan

on Tuesday the girls went to the Dr Alex is still getting pain in her tummy ( scar tissue and possible growing pains???) and Robyn has a chest infection and as we have hospital on Wednesday I wanted to be sure Alex would be ok to go in with or with-out isolation. Robyn also has a lump on her chest so we got an ultrasound but was told it is a birthmark ( deap veins in a bunch. called a hemangioma and is benign link will tell you more.http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002430/
had to add this Miss Robyn hogging mummies and daddies bed ♥


yesterday (Wednesday) the 9th of March, Robyn went to Pre-School but wanted to stay home, she also slept all night in her own bed which is rare but nice occasionally ♥, her pre-school is trying to raise funds for us with the shave too ♥

 Alex had her CT and Dr's Visit. first I called CCS its the local Childhood cancer support  to see if I could park there as after 2 hours at the RCH it is $20. max and we had a long day ahead, they said yes no worries so I arrived there and rang them to see where they wanted us tpo park, they even gave us a lift to the hospital and told us to call when we finished to be picked up.so straight up to Banksia outpatience and see the nurses we know so well, the weigh Alex and she has lost almost a KG ( Not good but she has been off her food this last few weeks :(  ) magic cream put on and start drinking the contrast ready for the CT at 1.30pm today was hard as she now has no port they had to put in an IV she hates needles so it was a noisy and unhappy experience, we had a wait as Onco/hemo was busy with day surgeries etc and blood transfusions, the dr called us in then decided to wait til after the CT, so down to radiology for CT, get called in after they finally get Alex's chart and Alex wants Mummy to stay with her another new thing she is excessivly clingy now to me even school she wants me to stay with her ♥ back to onco and wait to see Dr and get canula removed. scans show no visible change :) I like that and actually got to see the mass we are keeping an eye on its not as small as I had thought but still it is stable :), we now come back for ultrasound and X-Ray in June so 2.5 months away :), so glad we now have a few months off from that til the next one, and that this one was in the afternoon so she got breaky but then had to fast for a few hours before the CT ( No GA at least as she is a super trooper and lays still) the Onco also told me to watch Robyns Hemangioma as he was not happy with the diagnosis so if it gets larger we go back to a dr but pray its still what the Dr said it is ...

Waiting to get IV and obs done, so she is doing school work hehe
CCS play ground after everything was done and time to relax 

when I got home Hubby tells me he got 2 phone calls one from Banksia about surgery tomorrow for Alex's port!!! she had it removed in December so would be hard to find, and two from Leukaemia foundation about time for the shave tomorrow so we may have a representative from there join us :)


Daddy was away all last week with work so he got home on Monday and the girls were so excited :D they did miss him. he was at the Avalon airshow 2011 and here are some photo's including Zach the dolphin and bertrum bear ( burping bear as Alex has nicknamed him)  the girls sent with daddy getting the close up view
zach and bertrum are on the ground in front, this is a rare shot due to security and timing being just Right Thanks Hubby
Zachary the Dolphin yes the dolphin is pink in the marines arms from Hawaii and Bertrum bear

Note the dates hehe it was 2nd-7th March 2011 :) Hubby forgot to reset the camera date lol


do remember Hubby will be shaving it all off this weekend for the worlds greatest shave :) and I'll be colouring for this great cause, the school is ready and QT will be there at 10am so come and watch the fun if you want :D


you can still sponsor me to Colour... or help me reach my goal and Ill Shave to a No. 4 ( against Alex's wishes though hehe)  she doesnt like seeing mummy now with short hair as I kept mine short with her the whole way through Treatment


ok off to help at school today :) with Robyn and Alex will be happy to have Mummy there too

1 comment:

Anonymous said...

Relieved to hear scan is stable for now.

x