Well yesterday 25th November 09 was Orientation day at Alex's school, Hubby came for the first hour and I stayed the 3 she made a lantern and a snow flake and so did Robyn ♥ they had lunch with all the other prepies and year 1's and both joined in with it all. she was still not 100% so I was worried about bloods.
Later that day we had a nice BBQ dinner and spent some time outside in our yard watching the green tree frogs drop from the roof and then found some toads then back inside as Alex was still lethargic... she sat down to watch TV then had some play time with Miss Robyn and Yes you guessed it another NGA bites the dust.. Hubby calls after hours unit and they suggest we go in as she will need bloods due to the lethargic side and as the bloods would be dropping since the last 2 Chemo's we make the decision that he stay home with Miss Robyn and I take Miss Alex to Brisbane RCH DEM, I get there about 10.10pm and the waiting begins we get put into the quiet room first as she is neutropenic (possibly)
At first they wanted to do the tube without bloods then decided that could be a risk so we asked Alex what way she wanted bloods done she chose the port so emla was put on... the wait continues after 1 hr the nurse that was seeing us came over and said all was ready to go and she was going home so I have a wait for another nurse to do the tube. we waited around for another 45 mins and Alex slept for most of this now after 1am hehe, the bloods where done and they kept the port accessed just in case and we went back to sleeping well Alex did anyway. after about another 1.1/2 hours the bloods where back and I was hoping they had gone up but NO they where very low but the resident decided to do the tube and send us home so was a little worried but happy to be going home. so they got everything ready and no sedative this time due to the low count but I was happy about that as it would mean a longer wait after!!!.. after the tube they got an X Ray lucky she was called in for another patient so we made it 2 for her call in and this showed the tube was in the right position. and the Dr tells us all is OK to go home but keep an eye on her as she has low counts Neutropenic, Anaemic etc so we head home at 3.15am get home after 4am and well QLD don't have Daylight savings so it was a rising sun I get at home, got a small sleep and up at 8am with Miss Alex she now also has Diarrhea and still not 100% so have called the out-patience dept to see what I should be looking out for etc she is not drinking enough and its not a cool day :( we have had last Chemo and now this!!!!!
I now feel bad as she went to prep Orientation and this is what followed but I didnt know she was low just went on her last bloods which where ok lowish but not in the trouble zone none of the kids looked sick but you cannot tell by that so hope I have not put her in harms way...
1 comment:
ooh my dear you are not a bad mother but the complete opposite!! You are incredibly strong, loving, supportive!!!! I pray for Alex and your family every day. I truly am amazed by the strength of your family which is held together by you. Stay strong and know that you have blessing coming from all over the world. (HUGS)
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