last 7 days til end of Chemo

well we Had the big Chemo today and Alex has come back neutropenic but the Dr has said go ahead as next week is just one and will not matter what her bloods are and this one will drop them more over the next 7-10 days :( she slept through half of it hehe 4 hr Dose plus the other 2 1/2 hrs on top with the robot.. (IV drip lol)

we have 7 days til the last dose then we go into maintenance mode (what's this no idea they have not really said much only no chemo as of next week plus Ultrasounds and X Rays every few weeks and a CT scan when needed as well the CT is on the cards for the next few weeks too)

she is still having headaches but the Dr is happy to leave them at the moment and to give her PainStop every 6 hrs as needed ( panadeine for kids) I was giving it every 8 hrs when needed as didn't want to give her to much and normal panadol does nothing...we also had to get a plug for her tube so looks like a new tube is going to happen soon!!!!! not looking forward to that day :(  we have found a few families here today that are going into maintenance mode too so has made me feel better about us getting to the end of this phase..
all I know so far is that we will be doing scans etc and every 6 weeks they will access her port to make sure its still working ok til it is removed one day in the future

 we put the Christmas tree up on the weekend as its been a family tradition to do it on the weekend Adelaide does the Christmas Pageant so we still do it even living interstate ( QLD this year)

The girls had a ball I I even video taped it hehe...

ok now its time for us to play Wii Carnival Golf with Alex hehe she is a happy little girl even after all that's happened today so we make the most of every minute now as this has shown me that enjoy the here and now as things can change in seconds so memories are everything♥♥♥